『RARENETIC』のカバーアート

RARENETIC

RARENETIC

著者： Molly
無料で聴く

概要

 Hey there! Welcome to Rarenetic! I'm Molly, a high school sophomore and I created Rarenetic to educate people about rare diseases and genetic disorders (rare + genetic = rarenetic) and to keep them up to date with what is going on in the community. Welcome to rarenetic!Molly 衛生・健康的な生活 身体的病い・疾患
エピソード
  • COVID-19 & Rare Diseases

    COVID-19 & Rare Diseases
    2022/06/24

    Hey guys!! This week, I talk all about how COVID-19 impacted the rare disease world. Hope you enjoyed it!


    SOCIALS

    Instagram

    Twitter

    Linktree

    rareneticpod@gmail.com
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    5 分
  • Rare Disease Words and Phrases (that you'll hear me use a lot)

    Rare Disease Words and Phrases (that you'll hear me use a lot)
    2022/05/15

    Hey Guys! Thanks for listening to RARENETIC! Today's episode definitely has a lot of info in it, but make sure to follow us on Instagram to get the link.


    SOCIALS:

    Instagram

    Twitter

    LinkTree

    rareneticpod@gmail.com
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    9 分
  • What are Rare Diseases and What Does Being Undiagnosed Mean?

    What are Rare Diseases and What Does Being Undiagnosed Mean?
    2022/04/29

    Hey! It's our first episode, all about rare disease specifics, being undiagnosed, and a Q&A at the end! I promised the website links to the resources I mentioned in the episode, so they're down below. Enjoy the episode!

    RESOURCE LINKS

    • Genetic and Rare Disease Information Center
    • Rare Disease Clinical Network
    • National Organization for Rare Disorders
    • Rare Diseases International
    • Rare Undiagnosed Network
    • Undiagnosed Diseases Network
    • Undiagnosed Diseases Network International

    SOCIALS

    • Instagram
    • Twitter
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    11 分
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