In this episode of the Parkinson’s Policy Podcast, we sit down with Deborah Swerdlow, Head of Policy at the Parkinson’s Foundation, and Ken Chason, a dedicated patient advocate and member of the Foundation’s Patient Policy Advisory Council (PPAC), for a timely and insightful conversation on the future of Parkinson’s policy.

Together, we explore the most pressing policy challenges impacting the Parkinson’s community today, from access to care and affordability of treatments to the need for increased research funding and stronger support systems for patients and caregivers. Deborah shares an inside look at how policy priorities are shaped at the Foundation, while Ken brings a powerful, lived-experience perspective on why patient voices must remain central to policymaking.

We also dive into what needs to happen next at both the state and federal levels to drive meaningful change, highlighting opportunities for advocacy and ways listeners can get involved.

Whether you’re living with Parkinson’s, caring for someone who is, or working in healthcare, policy, or advocacy, this episode offers valuable insights into how policy decisions shape real-world outcomes, and how you can be part of the solution.

More information for on the Parkinson’s Foundation’s policy work can be found here: https://www.parkinson.org/how-to-help/policy-advocacy-priorities

In this episode of our Parkinson’s Policy Podcast, we sit down with Rep. Hogan of Pennsylvania to discuss HB1135, a bill aimed at prohibiting the use of paraquat, a widely debated herbicide linked to increased Parkinson’s risk.

We explore the science behind paraquat, why this legislation matters for public health, and how advocates and constituents can effectively mobilize support. Rep. Hogan shares insights on the policymaking process and practical ways listeners can get involved in pushing for meaningful change.

In this episode of the Parkinson’s Policy Podcast, we speak with Geoff Horsfield, Legislative Director at the Environmental Working Group. Together, we explore the herbicide paraquat and its emerging connection to Parkinson’s Disease.

Geoff breaks down the latest policy developments, the science behind paraquat exposure, and why this issue is gaining national attention. We also discuss what constituents can do to advocate for change, including practical strategies for engaging with lawmakers and making their voices heard.

Whether you're directly impacted by Parkinson’s or interested in environmental health policy, this episode provides actionable insights and guidance on how to drive meaningful advocacy.

Contact geoff.horsfield@ewg.org to get involved or ask questions

The Paraquat Resource Library that the EWG has put together:
https://docs.google.com/document/d/1N3W5H9vpUvpFtk6iLmdwfcJ5xroTJBiW_pr3LblsxVg/edit?tab=t.0#heading=h.7iu5y1z4k82f