『POGZcast』のカバーアート

POGZcast

POGZcast

著者： White Sutton Syndrome Foundation
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概要

The POGZcast is a podcast for individuals and families affected by White Sutton syndrome. We’re Josh and Amanda Couch, and we’re parents, advocates, and part of the team behind the White Sutton Syndrome Foundation. The POGZcast exists because individuals with White-Sutton syndrome exist—and their stories matter. In each episode we share real conversations with parents, doctors, researchers, and advocates working to better understand White Sutton syndrome and support the families living it every day. Whether you’re newly diagnosed or years into this journey, you’re not alone—and we’re glad you’re here!

2026 White Sutton Syndrome Foundation マネジメント マネジメント・リーダーシップ 経済学 衛生・健康的な生活 身体的病い・疾患
エピソード
  • Why POGZcast Exists

    Why POGZcast Exists
    2026/01/02

    The inaugural episode of the POGZcast. In this episode, Josh and Mandy introduce themselves, talk about what White-Sutton syndrome is, talk foundation origins and share a little information about the new research fundraising effort.

    Research page: https://whitesutton.org/2026-research/

    CoRDS registry: https://whitesutton.org/research/registry/
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    27 分
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