This past weekend marked a powerful milestone for the show as our co-host Aaron hosted her very first episode—bringing passion, purpose, and meaningful conversation to the mic. She was joined by special guest Genesis Jones, a rare disease advocate and founder of the Rare Resilience Alliance.

Genesis shared her personal journey and how she uses her lived experience to empower others navigating rare diseases. Through her advocacy, she is actively bridging the gap between patients, providers, and communities—creating spaces where voices are heard and support is accessible. Her mission is clear and inspiring: to prove that resilience is possible, even in the face of uncertainty.

This episode is a heartfelt conversation about advocacy, strength, and the power of storytelling to spark change.

The next guest on On The Air Sickled is Dr. Lewis Thomas — a medical doctor living with sickle cell disease who recognized the gaps within the healthcare system and created the Sickleverse, a platform designed for warriors everywhere to thrive in a universe of their own. This conversation dives into lived experience, innovation, and advocacy in action — you won’t want to miss it.

On this special episode, we sit down with Jackye Fulton to discuss her experience as an aunt of a sickle cell warrior (The Host OD), along with a genuine conversation centered on family and real-life stories.