More Than a Diagnosis: A Rett Syndrome Story with Kelly | EP7
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More Than a Diagnosis: A Rett Syndrome Story with Kelly | EP7
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What happens when a diagnosis changes the future you imagined for your child?
In this heartfelt episode of Tune In: The First 3 Years, Nicole Jensen sits down with Kelly, a mother navigating her daughter’s Rett syndrome diagnosis with honesty, faith, and fierce love. Kelly shares what it felt like to receive unexpected news, the grief that can surface in everyday moments, and why her daughter is so much more than a diagnosis.
Together, they discuss early intervention, parent-led goals, finding the right support team, and the power of speaking openly when you need help. Kelly also offers meaningful guidance for families newly facing a diagnosis, and for loved ones who want to show up with care. This is a tender, hopeful conversation about patience, advocacy, and seeing the whole child.
I trust you found this episode enlightening and stimulating. If you’re eager for more, subscribe to our podcast for regular updates. I’m always keen to hear your reflections and personal journeys. Connect with me on Instagram as @nicolereneejensen. For a deeper understanding of my work and how it can empower you, visit https://linktr.ee/nicolereneejensen