Major Pain

著者： Jesse Mercury
無料で聴く

  • サマリー

  • The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.
    Major Pain Podcast
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あらすじ・解説

The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.
Major Pain Podcast
衛生・健康的な生活
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エピソード
  • Living with Visual Snow Syndrome

    Living with Visual Snow Syndrome
    2025/04/23
    Willemijn lives with a rare condition called visual snow syndrome, or VSS. She sees static in her entire field of vision, no matter if her eyes are open or closed. This constantly moving static is black and white, similar to that of an old TV. The static itself is only one symptom out of many that Willemijn experiences, including blurred motion, after images and tinnitus, a constant ringing in the ears. She also experiences burning or cold prickling sensations in her body, and a sense of depersonalization. Overall, this is an overwhelming and debilitating constellation of overstimulating sensory experiences that has drastically changed her life. Willemijn's journey with VSS started about a year ago, but this was not her first unexplained health crisis. Several years before she had woken up with her legs no longer working, precipitating the need for a wheelchair for the next 6 months. Doctors never figured out why this happened, partially because the problem was worked through in physical therapy while Willemijn waited a year to see a specialist. Her visual snow started when she was about 20 weeks pregnant, and when her son was born she experienced a thyroid issue that eventually turned into Hashimoto's disease. Dealing with her day to day symptoms has been frustrating enough, but the lack of answers or support from medical professionals has been deeply discouraging. In this episode of the Major Pain podcast, Willemijn tells us what it's like to live with visual snow syndrome, and talks us through her medical journey so far. The onset of VSS has felt like she's in some kind of glitch where she doesn't feel like herself anymore, which has understandably led to anxiety and depression. Still, Willemijn has hope that researchers will uncover clues about how to treat this mysterious disease in the future. In the meantime, she has learned a great deal by connecting online with others going through similar things. She hopes that by sharing her story she can shed a light on VSS, spreading awareness about the disease itself, and the importance of continued research. Learn more about VSS at the Visual Snow Initiative's website: https://www.visualsnowinitiative.org/ PlayWatch the episode on YouTube, or listen on your favorite podcast platform.
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    48 分
  • Season 5 Premiere! Catching Up With Previous Guests Joey, Colby and Angela

    Season 5 Premiere! Catching Up With Previous Guests Joey, Colby and Angela
    2025/04/09
    Today we are kicking off the fifth season of Major Pain! Jesse reflects on the past year before we jump into three interviews with previous guests, updating us on their health journeys. Joey tells us about a surgery to manage his hidradenitis suppurativa, plus updates on his amazing advocacy work. Check out Joey's original episode here: https://majorpainpodcast.com/living-with-hidradenitis-suppurativa/Sign up for the upcoming HS Brotherhood meet up: https://zoom.us/meeting/register/d1fgOjAoTGOmmJDu9J9J8g#/registration Colby updates us on a new diagnosis, and discusses how past trauma has influenced their decision to undergo elective surgery. Find Colby's original episode here: https://majorpainpodcast.com/managing-somatic-symptom-disorder-inside-a-multitude-of-chronic-illnesses/ Angela tells us how breathing problems led to her diagnosis with pulmonary hypertension.Find Angela's original episode here: https://majorpainpodcast.com/surviving-multiple-chronic-illnesses-surgeries-a-coma-and-being-pronounced-dead-angela-b-brown-feels-blessed-to-be-alive/ PlayWatch the episode on YouTube, or listen on your favorite podcast platform.
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    1 時間 40 分
  • Sarah Fox on the Intersection of Mental Health and Faith

    Sarah Fox on the Intersection of Mental Health and Faith
    2025/03/26
    Since being diagnosed with bipolar 1 disorder, Sarah Fox has made it her mission to break down the stigma surrounding mental health. She is the host of the Rough Edges podcast, which provides tools for mental health education and examines the intersection between faith and mental health. Sarah's faith journey has been an integral part of her bipolar journey, in fact her diagnosis initially triggered a crisis of faith that she has since overcome. In January of 2021, Sarah experienced a severe manic episode. This involved disruptions in her sleep, incoherent thoughts and psychosis, with both auditory and visual hallucinations. Her memories of this time are hazy, but she does remember feeling a powerful sense of euphoria, like she was on top of the world. As this manic episode increased in intensity Sarah became aggressive, at which point her family decided to have her hospitalized. During her three week stay in the hospital Sarah was diagnosed with bipolar disorder, and the severity of her manic episode qualified her as type 1. In this episode of the Major Pain podcast, Sarah discusses how her bipolar diagnosis transformed her life, initially turning her world upside down. Her prior knowledge of bipolar had a negative connotation due to poor representation in popular media, and to be diagnosed with this disease triggered not only a crisis of faith but also an identity crisis. She suddenly had to re-contextualize everything she thought about herself, but the resulting transformation has brought her to a place of stability in both her bipolar journey and her faith. Through her mental health advocacy work she endeavors to spread a message of hope, proving it is possible to thrive with bipolar. Connect with Sarah and check out the Rough Edges podcast at https://www.roughedgespodcast.com/ PlayWatch the episode on YouTube, or listen on your favorite podcast platform.
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    1 時間 3 分

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