『Major Pain』のカバーアート

Major Pain

Major Pain

著者： Jesse Mercury
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【Amazonプライム会員限定】今ならプレミアムプランが4か月 月額99円。

10月19日まで。※適用条件あり
The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.Major Pain Podcast 衛生・健康的な生活
エピソード
  • Relearning Joy After a Lifetime of Medical Trauma with Neuronal Dysplasia

    Relearning Joy After a Lifetime of Medical Trauma with Neuronal Dysplasia
    2026/09/09
    When your body is a medical stomping ground, how do you transform it back into a vessel deserving of joy and pleasure? For Melissa—a Seattle-based mental health counsellor—this question arises from a lifelong exploration filled with relapses, flare-ups, malnutrition, and self-discovery. With compassion and confidence, she shares the story of her rare major pain: neuronal dysplasia. At just two days old, Melissa underwent her first surgery. Faced with the news that, if their daughter survived, she would likely be deaf, blind, and mute, her parents spent years traveling in search of answers. In elementary school, Melissa’s disease was finally officially diagnosed: neuronal dysplasia is a rare condition impacting the nerves that control intestinal function. After countless surgeries for true and pseudo-bowel obstructions, Melissa has no large intestine and only a partial small intestine. Years of malnutrition and dehydration from her body’s inability to absorb nutrients means that today Melissa receives total parenteral nutrition (TPN) through an IV directly into her bloodstream. Anyone who has had to abstain from food for any length of time knows what hunger feels like. Because Melissa’s stomach is always empty, she feels these same cues and pangs, but decades of careful experimentation have taught her that eating anything orally results in painful and debilitating symptoms or even surgery. As such, she seeks out alternatives to the pleasurable sensations most people derive from food. From scented candles to cozy clothes and bodywork practices, Melissa provides her body with other affirmations of its innate need for physical pleasure. The rifts wrought from decades of internalized ableism drove Melissa to hide her disease and work herself too hard to “make up” for her perceived deficits. Ultimately, this resulted in another diagnosis: severe autonomic nervous system dysfunction. She shares what she went through during what she considers the hardest part of her experience and how she worked—and is working still—to shift the mindset that led her there and rejoin all parts of herself into one full, proud human worthy of love, and success, and pleasure. Shed light on the disconnection of chronic illness and how we begin to heal: Finding gratitude and joy in the face of an unpredictable and debilitating disease;The evolution of eating when your body can’t use what you feed it;The emotional and mental strain of constantly partitioning your “healthy” and “unhealthy” parts;The importance of intentionality in recovery and rediscovery. Learn more about the Seattle-based Center for Chronic Illness: https://www.thecenterforchronicillness.org/ https://www.youtube.com/watch?v=YMxXRttl3s8 Watch the episode on YouTube or Spotify, listen here on our website or on your favorite podcast platform. PODCAST LINKSWEBSITE: https://majorpainpodcast.comEMAIL: majorpainpodcast@gmail.comSUBSCRIBE: https://majorpainpodcast.com/subscribeSPOTIFY: https://open.spotify.com/show/5NDoD07WJmICdfdRKq0TyNAPPLE PODCASTS: https://podcasts.apple.com/us/podcast/major-pain/id1562947550?mt=2&ls=1 SOCIAL MEDIAINSTAGRAM: https://www.instagram.com/majorpainpodcastTIKTOK: https://www.tiktok.com/@majorpainpodcastYOUTUBE: https://www.youtube.com/@MajorPainPodcastFACEBOOK: https://www.facebook.com/majorpainpodcast AFFILIATE LINKSRARE PATIENT VOICE: https://rarepatientvoice.com/MajorPainPodcastAMAZON SHOP: https://www.amazon.com/shop/majorpainpodcastNEURAHEALTH: https://www.neurahealth.co/majorpain
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    56 分
  • Love Your Body, Own Your Health: Discussing Type II Diabetes with Kelvin Davis

    Love Your Body, Own Your Health: Discussing Type II Diabetes with Kelvin Davis
    2026/08/19
    What does “body positivity” mean to you? To Kelvin Davis, it began as a gap in the market. Women’s clothing advertising was leaning, more and more, into diversity in their models, while menswear seemed content to maintain the status quo of ultra-ripped or ultra-thin. Kelvin launched his body-positive menswear blog, Notoriously Dapper, to address this lack in the fashion industry. Since then, he has published two books and modeled for big names, including Lululemon and Gap. When his Type II Diabetes diagnosis came in 2021, Kelvin had a new crossroads to face: the intersection between loving his body and initiating positive changes for the sake of his health. In this episode of Major Pain, Jesse and Kelvin discuss the mechanisms and symptoms of this challenging disease and the medication and lifestyle change approaches that can improve its outcomes. Since enrolling in a diabetes education course, Kelvin has a strong grasp of what his symptoms—like high A1C levels and nerve pain in his hands and feet—mean for his well-being and longevity. Today, he manages his condition with movement and nutrition habits, but the process wasn’t easy. Particularly in Black communities, where access to health care, food, and education is all too often scarce, recognizing and acting on the healthier choices can be daunting and expensive. With a heartfelt combination of tough love and empathy, Kelvin discusses the importance of “choosing hard now and easy later” rather than “easy now and hard later,” and how this tradeoff plays into his new book, “Be a Good Man, Not a Nice Guy.” Body positivity must go beyond just accepting and showcasing larger bodies. Kelvin calls for taking accountability for your shortcomings and ownership in the pursuit of long-term health. For the sake of the future—his own and that of his two young daughters—he’s living that journey every day. Learn more about Kelvin and Notoriously Dapper: https://notoriouslydapper.com/ Buy Kelvin’s book, Be a Good Man, Not a Nice Guy: https://bookshop.org/p/books/be-a-good-man-not-a-nice-guy-a-guide-to-true-masculinity-kelvin-davis/923e9e4fd6fcc492 https://www.youtube.com/watch?v=0roefciyJ6Q Watch the episode on YouTube or Spotify, listen here on our website or on your favorite podcast platform. PODCAST LINKSWEBSITE: https://majorpainpodcast.comEMAIL: majorpainpodcast@gmail.comSUBSCRIBE: https://majorpainpodcast.com/subscribeSPOTIFY: https://open.spotify.com/show/5NDoD07WJmICdfdRKq0TyNAPPLE PODCASTS: https://podcasts.apple.com/us/podcast/major-pain/id1562947550?mt=2&ls=1 SOCIAL MEDIAINSTAGRAM: https://www.instagram.com/majorpainpodcastTIKTOK: https://www.tiktok.com/@majorpainpodcastYOUTUBE: https://www.youtube.com/@MajorPainPodcastFACEBOOK: https://www.facebook.com/majorpainpodcast AFFILIATE LINKSRARE PATIENT VOICE: https://rarepatientvoice.com/MajorPainPodcastAMAZON SHOP: https://www.amazon.com/shop/majorpainpodcastNEURAHEALTH: https://www.neurahealth.co/majorpain
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    1 時間 2 分
  • The Knowledge to Live Better: ALS, Advocacy, and Acceptance with Mindy Uhrlaub

    The Knowledge to Live Better: ALS, Advocacy, and Acceptance with Mindy Uhrlaub
    2026/08/05
    How do you live with the ever-looming uncertainty of being a gene carrier for a fatal disease? Amyotrophic lateral sclerosis—better known as ALS or Lou Gehrig’s disease—was long believed not to be genetic. Today, however, research shows that 10-15% of cases are linked to the mutation of various genes. The journey of potential future illness is one Mindy Uhrlaub has navigated since 2018, when she learned that she carries the C9OF72 genetic mutation. Since losing her grandfather and then her mother to ALS, Mindy has navigated the precariousness of questioning every symptom she develops, the hard knowledge that her children could also be carriers, and the decisions that come with any life-changing diagnosis: how will this knowledge impact my approach to the present and the future? In Mindy’s case, it has led her to advocacy and authorship. She is a founder of the End the Legacy community for carriers of ALS and FTD (frontotemporal degeneration) and the author of the Amazon bestseller, “Last Nerve: A Memoir of Illness and the Endurance of Family.” Everyone with chronic illness or the genetic potential to develop it must select a unique path. Mindy has chosen to immerse herself in the promise the future holds. She takes every preventative step available to her, including avoiding chemical exposure and inflammatory foods and taking an ALS drug prophylactically. Through End the Legacy, she and other community members pursue policy change and education through webinars and summits. She participates in numerous studies and shares the struggle of facing down the inevitable emotional triggers. For Mindy, this approach is not about fearlessness but about devoting her time, and her heart, to the life-affirming aspects of her unpredictable situation. Learn more about End the Legacy, a non-profit org for genetic carriers of ALS and FTD: https://www.endthelegacy.org/ Buy “Last Nerve: A Memoir of Illness and the Endurance of Family”: https://www.mindyuhrlaub.com/last-nerve https://youtu.be/l9w6YdTifVc Watch the episode on YouTube or Spotify, listen here on our website or on your favorite podcast platform. PODCAST LINKSWEBSITE: https://majorpainpodcast.comEMAIL: majorpainpodcast@gmail.comSUBSCRIBE: https://majorpainpodcast.com/subscribeSPOTIFY: https://open.spotify.com/show/5NDoD07WJmICdfdRKq0TyNAPPLE PODCASTS: https://podcasts.apple.com/us/podcast/major-pain/id1562947550?mt=2&ls=1 SOCIAL MEDIAINSTAGRAM: https://www.instagram.com/majorpainpodcastTIKTOK: https://www.tiktok.com/@majorpainpodcastYOUTUBE: https://www.youtube.com/@MajorPainPodcastFACEBOOK: https://www.facebook.com/majorpainpodcast AFFILIATE LINKSRARE PATIENT VOICE: https://rarepatientvoice.com/MajorPainPodcastAMAZON SHOP: https://www.amazon.com/shop/majorpainpodcastNEURAHEALTH: https://www.neurahealth.co/majorpain
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    1 時間 1 分
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