Lupus, Systems Failure, and the Identity Shift of Chronic Illness
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Lupus, Systems Failure, and the Identity Shift of Chronic Illness
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What happens when your immune system turns on you. And the healthcare system is not built to catch you.
In this episode of Rupture, Nina Scherenberg shares her experience living with lupus, a chronic autoimmune disease that reshaped her body, identity, and daily life.
She describes the flare that left her unable to sit upright. The long path to diagnosis. The exhaustion of navigating specialists who do not communicate with each other. And the emotional cost of becoming your own case manager.
This conversation explores chronic illness not just as a medical condition, but as a systems rupture. We talk about stress and autoimmune disease, identity shift, self advocacy, and why universal healthcare would radically change outcomes for people living with chronic conditions.
Rupture is a podcast about personal stories that expose systemic breakdown. If this episode moved you, please follow, rate, and share.
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