『Living with endometriosis, finding art and community』のカバーアート

Living with endometriosis, finding art and community

Living with endometriosis, finding art and community

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今ならプレミアムプランが3カ月 月額99円

2026年5月12日まで。4か月目以降は月額1,500円で自動更新します。

概要

 In this episode, Ellisha sits down with Thanai Caesar - CEO and founder of This Won't End Me, a UK and Canadian non-profit supporting people with endometriosis and menstrual health. Thanai shares her nine-year journey to being diagnosed with stage four deep infiltrating endometriosis, and opens up about the racial disparities in women's healthcare, how art became her lifeline, and why she turned her pain into purpose.Whether you're in the thick of trying to get a diagnosis, feeling completely alone with your symptoms, or just desperate to know someone else gets it - this one's for you.What we coverWhat endometriosis actually is - from the basics to the types most people have never heard of, including thoracic and deep infiltrating endo.The reality of living with endo before diagnosis - Thanai's nine years of being dismissed, the impact on her mental health, and the toll of chronic, invisible pain.Racial disparities in women's healthcare - why Black women face a harder road to diagnosis and what needs to change.Heat therapy, TENS machines and self-advocacy - practical tools for managing endo pain and getting the medical support you deserve.The role of the pill in masking symptoms - and what could happen when you come off it.This Won't End Me - how Thanai built a community-led non-profit from a drawing of a uterus she made in therapy during COVID.Using art as a healing tool - why creativity and community go hand in hand when you're navigating a chronic condition.Three listener dilemmas - including how to push through pain without people around you understanding, when to seek help if you've been dismissed before, and how to share your story online without feeling too exposed.About Thanai CaesarThanai Caesar is the CEO and founder of This Won't End Me (TWEM) - a UK and Canadian non-profit raising awareness of endometriosis, menstrual health and reproductive health. Through storytelling, workshops, exhibitions and community events, TWEM creates space for women to feel less alone in their diagnosis.Follow Thanai: @thiswontendmeFind out more about This Won't End MeRead Imogen Hooker's blog: My Health is My JobThis week's dilemmasDilemma 1"If sharing your story could help others feel less alone but also makes you feel vulnerable, how do you decide what parts of your experience to make public? I really want to start a page but I'm scared I'll give away too much of myself."Dilemma 2"If your pain is super severe but invisible to others, how do you decide when it's serious enough to seek help - especially if past experiences have made you feel dismissed?"Dilemma 3"Do you push through the pain or cancel plans, knowing people might not understand?"Resources mentionedUnder the Belt (documentary) — directed by Shannon CohnThis Won't End Me — community events, blog and storytelling platformEndometriosis UK — information and supportImogen Hooker — My Health is My JobOur sponsor: Evelyn HealthEvelyn Health is dedicated to helping those struggling with PMS and PMDD through expert-led, science-backed supplements and functional foods. Having used them for over a year to manage my own hormonal health, I'm so proud to have them as a partner.Get 20% off your first order with code HOTLINE20 at evelynhealth.comShop Evelyn HealthA note from usThis podcast explores research and lived experience around women's health and chronic conditions. Our discussions aim to reflect current evidence while acknowledging that understanding in this field continues to evolve. The content is intended for educational purposes only and is not a substitute for personalised medical advice, diagnosis, or treatment. Listeners experiencing significant or distressing symptoms should seek guidance from a qualified healthcare professional.Follow the Hormonal HotlineSubscribe, leave a review and share with a friend who needs to hear this.YouTubeApple PodcastsSpotify
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