Living with LEMS isn’t always obvious to the outside world—but that doesn’t make it any less real. Invisible symptoms like muscle weakness, fatigue, or dizziness can quietly disrupt your workday, your weekend plans, or even your sense of identity.

In this episode of The LEMS Aware Podcast, host Amy Grover speaks with Maria, a nurse and home health administrator who was diagnosed with LEMS in 2025. Maria opens up about what it’s like to keep leading at work while dealing with unpredictable symptoms, and how she’s learned to adjust her routines, both professionally and socially, without sacrificing her values or voice.

If you’re learning to live with LEMS or walking alongside someone who is, this episode shares practical ways to deal with what others can’t always see.

Follow Us

• X @BeLEMSAware
• Facebook @BeLEMSAware
• Instagram: @BeLEMSAware
• YouTube: @BeLEMSAware
• Presented by Catalyst Pharmaceuticals
  www.catalystpharma.com

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The LEMS Aware Podcast is a new series created to celebrate and support people affected by LEMS, whether they’re patients, caregivers, or medical professionals. Hosted by Amy Grover, Executive Director of Patient Advocacy at Catalyst Pharmaceuticals, the podcast aims to shed light on the everyday realities of this rare neuromuscular condition.

In this trailer episode, Amy introduces the purpose behind the series and what listeners can expect: insightful conversations with individuals navigating LEMS, and expert perspectives from clinicians and researchers in the field.

Whether someone is newly diagnosed, supporting a loved one, or providing care as a healthcare professional, this podcast offers a trusted space for learning and connection.

Follow Us

• X @CatalystForRare
• Facebook @CatalystForRare
• LinkedIn @catalystforrare
• Instagram: @CatalystForRare

Presented by Catalyst Pharmaceuticals
www.catalystpharma.com

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

On this episode of the LEMS Aware podcast, we are joined by Patrick, who shares his challenging journey to receiving a LEMS diagnosis. As someone dedicated to serving others through work and church, Patrick struggled with suddenly needing to rely on others for help. His diagnosis process forced him to take significant time off, burning through his sick leave. Like many of our guests, Patrick's experience taught him the importance of being in tune with his body, recognizing when something feels "off," and persistently advocating for himself to seek answers about his health.

LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS. Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.