『Keep It Science | The Rare Autoimmune Condition Scleroderma: Clinician and Patient Insights』のカバーアート

Keep It Science | The Rare Autoimmune Condition Scleroderma: Clinician and Patient Insights

Keep It Science | The Rare Autoimmune Condition Scleroderma: Clinician and Patient Insights

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In this episode of Keep It Science, we shine a light on the rare autoimmune condition Scleroderma — and the human side of living with it.Host Dr Nick Gaunt is joined by two special guests:

  • Prof. Dr Francesco Del Galdo — Susan Cheney Professor of Experimental Medicine, Head of the Scleroderma Programme at NIHR Leeds, Chair of the Scleroderma Forum, and President of EUSTAR.
  • Dr Elisabeth Kugler — Director at Zeeks, co-host of Keep It Science, scientist, and patient living with overlapping rare autoimmune conditions including Scleroderma, Dermatomyositis, and Secondary Raynaud’s.
  • Why Scleroderma is so difficult to diagnose and treat
  • The importance of the clinician–patient relationship
  • How patients can support their doctors during clinic reviews
  • The role of self-management beyond medication
  • Elisabeth’s personal journey balancing science, daily life, and chronic illness
  • Breakthroughs in Scleroderma research and what’s on the horizon
  • Patients: sruk.co.uk
  • Clinicians & researchers: scleroderma-forum.com

Together, they explore:This candid conversation highlights both the science and the stories behind rare diseases, offering insights for patients, clinicians, and anyone interested in how research translates into real lives.🔗 Resources:

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