In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by novelist and disability advocate Sabina Nordqvist. Sabina discusses her personal 12-year battle with idiopathic intracranial hypertension (IIH), POTS, and Ehlers-Danlos syndrome. She shares the profound impact of misdiagnosis, the importance of self-advocacy, and how her experiences in support groups led her to write a novel called It's All in Your Head that puts disabled characters front and center. Dr. Peters is then joined by Dr. Jeremy Cutsforth-Gregory, an Assistant Professor of Neurology at Mayo Clinic in Rochester, Minnesota, working in the Division of Neurologic Education. Dr. Cutsforth-Gregory explains cerebrospinal fluid and IIH, highlighting the treatments that are available and where research is going next.

Additional Resources

Sabina Nordqvist- It's All in Your Head

Understanding the Mysteries of POTS and Other Autonomic Disorders

A Swimmer Returns to the Pool After Ehlers-Danlos Syndrome Diagnosis

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Guests: Sabina Nordqvist @nordqvistbooks; Dr. Cutsforth-Gregory @mayoclinic

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD