『It Happened To Me: A Rare Disease and Medical Challenges Podcast』のカバーアート

It Happened To Me: A Rare Disease and Medical Challenges Podcast

It Happened To Me: A Rare Disease and Medical Challenges Podcast

著者： Cathy Gildenhorn Beth Glassman and Kira Dineen (DNA Today)
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今ならプレミアムプランが3カ月 月額99円

2026年5月12日まで。4か月目以降は月額1,500円で自動更新します。

概要

 The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face of difficult health obstacles. It happened to me…I’m not alone and neither are you. We encourage you to learn more at ItHappenedToMePod.com. Please use the contact form on our website to submit your guest suggestions, comments, questions, ideas, and feedback for the show, you can also email us directly at ItHappenedToMePod@gmail.com. It Happened To Me is created and hosted by Cathy Gildenhorn and Beth Glassman. Steve Holsonback is our media engineer and co-producer. DNA Today’s Kira Dineen is our ...All rights reserved to the team: Cathy Gildenhorn, Beth Glassman, & Kira Dineen (DNA Today) 科学
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  • #83 Surviving Addiction and Suicide Attempts: Drew Motiv’s Journey to Recovery

    #83 Surviving Addiction and Suicide Attempts: Drew Motiv’s Journey to Recovery
    2026/05/04

    A sensitive content warning: this episode includes discussion of substance addiction, mental health struggles, suicide attempts, and recovery.

    If you or someone you know is in immediate danger or at risk of harm, call 911 or go to the nearest emergency room. The 988 Suicide & Crisis Lifeline is available 24/7 in the U.S., call or text 988 to connect with a trained counselor, or use the online chat through the 988 Lifeline. It supports people experiencing suicidal thoughts, emotional distress, mental health crises, and substance use concerns.

    To honor May being Mental Health Awareness month we invited Drew Motiv to share his story of transformation through addiction, mental health struggles, and surviving suicide attempts, in this episode. Now a motivational speaker and founder of the Divine Family Movement, Drew opens up about the darkest chapters of his life and how he found his way toward healing, self-belief, and purpose.

    We explore what it truly means to hit rock bottom, the isolation that can come with addiction and recovery, and the difficult work of rebuilding your identity after trauma. Drew reflects on the internal battles he faced, the moments that changed his path, and how he now uses his lived experience to help others feel less alone.

    Beth and Cathy also talk with Drew about the emotional complexity of recovery, learning to trust yourself again, coping with lingering anxiety and darkness, and turning personal pain into public advocacy. His story is both deeply personal and broadly resonant for anyone navigating mental health challenges, addiction, or the long road back to themselves.

    In this episode, we discuss:
    • Drew Motiv’s journey through addiction and mental health struggles
    • What “rock bottom” looked like in his life
    • Surviving suicide attempts and the emotional aftermath
    • The role of isolation, honesty, and support in recovery
    • Rebuilding trust in yourself after trauma
    • How recovery is not linear
    • Turning painful experiences into purpose-driven advocacy
    • Founding the Divine Family Movement
    • Redefining strength, especially for men facing stigma around vulnerability
    • What Drew wants listeners who are struggling to hear right now

    If you or someone you know is struggling, please use the resources below.

    Drew’s Links:

    Follow Drew Motiv on Instagram @Drew_Motiv

    divinefamilymovement.com

    Resources:

    Need support? If you or someone you know is in immediate danger, call 911 or go to the nearest emergency room. In the U.S., you can call or text 988 for the Suicide & Crisis Lifeline 24/7. For substance use or mental health treatment referrals, contact SAMHSA’s National Helpline at 1-800-662-HELP (4357). For text-based crisis support, text HOME to 741741. Veterans and service members can reach the Veterans Crisis Line by calling 988 and pressing 1 or texting 838255. For non-crisis support and local mental health resources, contact NAMI HelpLine at 1-800-950-NAMI (6264) or text NAMI to 62640.

    Connect With Us:

    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.

    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.

    See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

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    28 分
  • #82 Paralyzed Overnight: Relearning to Walk After Guillain-Barré Syndrome

    #82 Paralyzed Overnight: Relearning to Walk After Guillain-Barré Syndrome
    2026/04/20

    Guest Ra-Jon James opens up about his medical emergency that turned his world upside down in an instant. Ra-Jon was diagnosed with Guillain-Barré Syndrome (GBS), a rare neurological condition where the body’s immune system attacks the nerves, leading to rapid muscle weakness and, in Ra-Jon's case, sudden paralysis.

    Ra-Jon first shared his courageous journey on WTKR news in his hometown, and in this episode he joins us to go deeper into the emotional and physical grit required to relearn how to stand, walk, and reclaim his independence.

    In This Episode, We Discuss:
    • The Sudden Onset: Ra-Jon describes the terrifying moment his body stopped responding and how quickly his symptoms progressed from minor sensations to total loss of movement.
    • Understanding GBS: A look at Guillain-Barré Syndrome in plain English, what it feels like when your nervous system "short-circuits" and the emotional toll of losing autonomy overnight.
    • The Diagnostic Journey: The moment of receiving the diagnosis and why early medical intervention is the most critical factor in recovery.
    • The Road to Recovery: What it’s actually like to start physical therapy when even the smallest movements feel impossible. Ra-Jon shares the profound experience of his first steps after paralysis.
    • Mindset & Resilience: How Ra-Jon stayed motivated during the "invisible" days of progress and the role mental strength plays in neurological healing.
    • Support Systems: The importance of community and the specific ways loved ones can provide hope during a long-term recovery.
    Key Takeaways for Listeners:
    • Recognize the Red Flags: Rapidly spreading weakness or tingling in your extremities should never be ignored.
    • You Are Not Alone: GBS can be an isolating experience; Ra-Jon offers advice for those currently terrified by a new diagnosis.
    • Defining Hope: What healing looks like today and why believing in your body’s ability to recover is half the battle.
    Resources Mentioned:
    • Ra-Jon’s WTKR News Feature
    • GBS/CIDP Foundation International Website
    About the Guest:

    Ra-Jon James is a GBS survivor and advocate. After his story went public following a local news appearance, he has dedicated himself to raising awareness about Guillain-Barré Syndrome and providing hope to others facing sudden neurological challenges.

    Connect With Us:

    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.

    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.

    See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

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    27 分
  • #81 How to Support Someone with Chronic Illness

    #81 How to Support Someone with Chronic Illness
    2026/04/06
    We welcome back Meredith Mangold to shift the conversation from the medical "odyssey" to the human connection. While the first part of Meredith’s story (Episode 76) focused on her grueling search for a diagnosis and treatment for ulcerative colitis, POTS, and EDS, in this episode, we explore the essential, and often overlooked, role of support systems. Living with chronic pain at an "8 out of 10" for years isn’t just a physical challenge; it’s a relational one. Meredith joins hosts Cathy and Beth to discuss what it means to be truly supported when an illness doesn't have an end date. We dive into the nuances of communication, the "guilt of being too much," and the common mistakes well-meaning loved ones make when trying to "fix" a situation that can’t be fixed. Whether you are navigating a chronic condition yourself or walking alongside someone who is, this episode offers a masterclass in empathy, validation, and the power of simply being believed. Episode Topics: Survival vs. Support: Identifying the moments when external support became essential to Meredith’s survival during her hardest years of chronic pain.The Anatomy of a Support System: What effective support looks like practically, emotionally, and through "quiet presence."Validation vs. "Fixing": Why well-meaning advice can sometimes feel harmful and how to pivot toward validation and safety.The Burden of Guilt: Navigating the fear of being "too much" for friends and family.Communicating the Invisible: Tips for articulating needs when pain is invisible and chronic.Advocacy without Burnout: How patients can ask for what they need without feeling ashamed. About the Guest: Meredith Mangold, CPXP, is the Founder of Empower Health Strategies and a Certified Patient Experience Professional. After being thrust into the healthcare system at age 20 with severe ulcerative colitis, later followed by diagnoses of POTS and Ehlers-Danlos Syndrome, Meredith dedicated her career to helping healthcare professionals and digital health innovators empathize with the patient journey. She serves on the board of the Chronic Pain Project, is a faculty member for the BiteLabs Fellowship, and collaborates with Johns Hopkins Hospital on patient advocacy initiatives. Resources & Links Mentioned: Meredith’s Website: Empower Health StrategiesConnect on LinkedIn: Meredith MangoldThe Chronic Pain Project: chronicpainproject.orgRead Meredith's Story: Emerging from the Fog (Johns Hopkins Medicine)The Chronic Illness Hotline: A text-based peer support line for those navigating chronic illness, pain, and disability. Support their mission or find help at chronicillnesshotline.org. Relevant It Happened To Me Podcast Episodes: #17 Mental Health Help with Social Worker Tamara Blum #25 Pancreatic Cancer with Patient Advocate Leslie Waldman #38 Dr. Tara Zier on Stiff Person Syndrome #66 Not Just Fatigue: Global Advocating for ME/CFS from Bed #76 When Pain Never Stops: A Survivor’s Story of Chronic Pain and Hope (Merdith’s First Interview) #77 When Chronic Illness Changes the Tune: A Musician’s Journey Through Diabetes and Stroke Connect With Us: Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”. “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer. See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.
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    44 分
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