『Inside the Children's Hospital』のカバーアート

Inside the Children's Hospital

Inside the Children's Hospital

著者: Katie Taylor Certified Child Life Specialist
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Inside the Children's Hospital shares real stories from parents, caregivers, and pediatric healthcare professionals navigating the emotional realities of caring for a hospitalized child with honesty, compassion, and hope.2026 Child Life On Call® 人間関係 子育て 衛生・健康的な生活 身体的病い・疾患
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  • When the Hospital Stay Ends: Understanding Pediatric Medical Traumatic Stress
    2026/06/03

    For many families, going home from the hospital feels like the finish line. But what happens when the emotional impact of a medical experience lingers long after discharge?

    On this episode of Inside the Children's Hospital, Katie Taylor sits down with Jen Aspengren, founder of Alongside Network, to discuss pediatric medical traumatic stress (PMTS), a common yet often overlooked experience that affects children, parents, siblings, and caregivers following serious medical events.

    Jen shares her family's journey after her infant son underwent life-saving airway surgery at just seven months old. While his physical recovery went well, the emotional effects lasted for years, leading Jen to discover a significant gap in support for families navigating life after hospitalization.

    Together, Katie and Jen explore:

    • Jen's son's diagnosis of congenital subglottic stenosis and emergency airway surgery

    • The unexpected emotional toll that followed after returning home

    • What pediatric medical traumatic stress (PMTS) is and how it affects the entire family

    • Common signs of traumatic stress in children, parents, and caregivers

    • Why many families feel isolated after discharge despite receiving excellent medical care

    • The importance of validation, community, and coping skills during recovery

    • How small moments of connection from healthcare providers can build trust and resilience

    • The impact of emotional support on long-term health outcomes and medical adherence

    • How Alongside Network is helping families and healthcare providers better navigate medical trauma

    Jen also shares practical insights for healthcare professionals, highlighting how simple actions—such as a follow-up phone call or a few moments of acknowledgment—can make a lasting difference for families facing difficult diagnoses and hospitalizations.

    This conversation is a powerful reminder that healing doesn't end when a child leaves the hospital. Supporting the emotional well-being of children, parents, and caregivers is an essential part of recovery.

    About Our Guest Jen Aspengren

    Jen Aspengren is the founder of Alongside Network, a nonprofit organization dedicated to helping families and healthcare providers address pediatric medical traumatic stress. Prior to founding Alongside, Jen spent over 20 years working in systems-change initiatives and supporting social entrepreneurs around the world. Today, she combines her professional expertise with her lived experience as a healthcare parent to improve support systems for families navigating medical challenges.

    About Alongside Network

    Alongside Network works to ensure that families affected by pediatric illness, injury, and hospitalization have access to the emotional support they need during and after medical experiences.

    One of their core offerings is a free six-week virtual well-being program for parents and caregivers based on the evidence-based Take a Breath curriculum developed at the Royal Children's Hospital in Melbourne, Australia. The program focuses on:

    • Validation of family experiences

    • Building supportive community connections

    • Developing coping and resilience skills

    Resources & Links
    • Learn more about Alongside Network: https://www.alongsidenetwork.org

    Connect with us!
    • Instagram: @childlifeoncall + @insidethechildrenshospital

    • Subscribe: Never miss an episode on Apple Podcasts or Spotify.

    • Visit insidethechildrenshospital.com to search stories and episodes easily

    • Leave a Review: It helps other families find us and access our resources

    Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family.

    Pediatric Medical Traumatic Stress, Medical Trauma, Medical Parenting, Child Life Specialist, Family-Centered Care, Pediatric Mental Health, Caregiver Support, Pediatric Hospitalization, Trauma-Informed Care, Family Resilience

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    40 分
  • From Pharmacist to Mom: Navigating Type 1 Diabetes and Celiac Disease
    2026/05/27
    What happens when the healthcare professional becomes the parent sitting on the other side of the diagnosis? In this episode, Katie Taylor sits down with Melissa Apa—a clinical pharmacist, diabetes educator, and mom—to share her family's journey navigating both celiac disease and type 1 diabetes with her young son. Melissa opens up about the emotional overwhelm of receiving life-changing diagnoses, even with years of medical expertise behind her, and how her family learned to adapt, advocate, and find stability in the chaos. From replacing every pot and pan in her kitchen overnight to teaching her six-year-old how to manage his insulin pump, Melissa shares the realities of parenting a child with chronic illness while balancing work, marriage, caregiving, and the emotional toll of always being "on." Together, Katie and Melissa explore the invisible mental load medical parents carry, the importance of empowering kids to advocate for themselves, and why support systems matter just as much as medical education. This conversation is honest, practical, and deeply hopeful for any parent navigating a chronic diagnosis with their child. What You'll Hear in This Episode: The unexpected appointment that changed everything with a celiac diagnosis Why Melissa says her entire career prepared her to care for her son The emotional impact of becoming both a healthcare provider and a medical mom How type 1 diabetes and celiac disease are often connected The pressure parents feel around "good" and "bad" numbers in diabetes care Why medical parents need systems, routines, and "go bags" to survive daily life Teaching children to advocate for themselves in school and healthcare settings The realities of never fully stepping away from caregiving responsibilities How Melissa and her husband creatively protect their relationship and mental health Why diabetes management can become more manageable with support and practice Key Takeaways: Chronic illness management is emotional—not just medical Blood sugar numbers are data, not moral judgments Kids are capable of learning and advocating for themselves earlier than we think Systems and routines can reduce overwhelm for families Caregivers deserve support, too The beginning of a diagnosis journey is often the hardest part—but it won't always feel this overwhelming About Our Guest: Melissa Apa is a clinical pharmacist, diabetes educator, podcast host, and mom of two from Buffalo, New York. After diagnosing her son with type 1 diabetes and navigating celiac disease as a family, Melissa shifted her focus toward helping families manage chronic illness with more confidence, support, and sustainable systems. Through coaching, education, and advocacy, she helps parents move from survival mode to feeling empowered in everyday life. Resources & Links: Connect with Melissa on Instagram: @melissaapa_ Listen to her podcast: Insulin Inspired Learn more about Melissa's coaching and resources on her website Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Keywords: type 1 diabetes, celiac disease, parenting a child with diabetes, diabetes mom, medical parenting, chronic illness parenting, pediatric diabetes, celiac diagnosis, type 1 diabetes support, caregiver mental health, diabetes advocacy, medical mom podcast, child chronic illness support, parenting through diagnosis
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    41 分
  • A NICU Dad Story: Life After a 25 Week Premature Birth
    2026/05/20
    "I kept telling her, 'We've got this.' And inside, I had no clue what was coming next." What does it look like to be "the strong one" when your world is falling apart? In this episode, Katie Taylor sits down with Jared Muscat—dad, surfer, and self-proclaimed "dad-vocate"—to share his family's unexpected journey into the NICU after a high-risk pregnancy. From a routine 20-week appointment to welcoming his son Ollie at just 25 weeks, Jared opens up about fear, resilience, and what it means to show up as a partner and father in crisis. He shares the emotional weight of protecting his family while processing his own grief, the importance of finding support, and how small rituals—like late-night NICU visits and lullabies—helped him bond with his son. This is an honest, heartfelt conversation about fatherhood, vulnerability, and the strength it takes to keep going when nothing feels certain. What You'll Hear in This Episode: The moment everything changed during a routine pregnancy appointment Navigating uncertainty, fear, and decision-making as a dad and partner The emotional experience of becoming a NICU parent overnight How Jared balanced supporting his wife, caring for his older son, and coping himself The power of routines, community, and finding other dads who understand What bonding looks like in the NICU—and the moment it finally clicked Life after the NICU and adjusting to a new normal at home Key Takeaways: Dads experience deep emotional strain in the NICU—often quietly You don't have to carry everything alone—finding support is essential Small, consistent rituals can create stability in chaos Bonding doesn't always happen immediately—and that's okay The NICU feels endless, but it won't last forever About Our Guest: Jared Muscat is a father of two, a marketing agency owner, and a passionate advocate for NICU dads. Through his own experience, he now supports other families navigating complex medical journeys. Resources to Support NICU Families The NICU Dad Listen to Alex's Story here. March of DimesHand to Hold Connect with Jared Instagram Website Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: NICU dad, NICU father support, NICU dad mental health, premature baby dad, NICU parenting for dads, NICU dad podcast, NICU journey dad, father of preemie, NICU support for fathers, dad in the NICU
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    50 分
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