『HypoPara Unscripted』のカバーアート

HypoPara Unscripted

HypoPara Unscripted

著者： hypoparaunscripted
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今ならプレミアムプランが3カ月 月額99円

2026年5月12日まで。4か月目以降は月額1,500円で自動更新します。

概要

HypoPara Unscripted brings together experts and patients for meaningful, honest, candid conversations about living with hypoparathroidism, a rare condition of the hypoparathyroid glands (4 tiny endocrine glands in the neck) which which make a hormone that regulates calcuim and phosphorus levels in the blood. From treatments and advances to real life challenges and resilience, the goal of this podcast is simple: to educate, empower and connect the hypopara community. Hosted by Patty Keating, patient advocate and director of the Hypoparathyroidism Association, this podcast will bring a better understanding of hypopara as well as hope to all who are living with this difficult rare disease. New podcast weblog

Copyright 2026 All Rights Reserved マネジメント マネジメント・リーダーシップ 生物科学 科学 経済学
エピソード
  • More Than What the Labs Show - a Conversation with Hypopara Expert Dr. Rubin

    More Than What the Labs Show - a Conversation with Hypopara Expert Dr. Rubin
    2026/03/26

    In this second episode of HypoPara Unscripted, Patty sits down with expert Dr. Rubin about all things hypopara. From the “SHINE” study (a research history examination of participating hypopara patients), to the real-life challenges patients live with every day, Dr. Rubin explains the effects hypopara has on bone health, brain fog, fatigue, and cognitive function. Join Patty and Dr. Rubin as she shares heartfelt advice about self advocacy, how you can still “not feel right” even though lab results look “normal” and the promise of improved quality of life with PTH based therapies.

    Dr. Rubin’s insight and compassion blended with Patty’s heartfelt patient perspective offers hope, validation and a deeper understanding of what it truly means to live with hypoparathyroidism.

    To get in touch with Patty Keating, Executive Director of the Hypoparathyroidism Association, please email her at pkeating@hypopara.org
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