Health Anxiety, Love, & Other Complicated Feelings (with Tyler Lima-Roope)
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Health Anxiety, Love, & Other Complicated Feelings (with Tyler Lima-Roope)
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概要
Tyler Lima-Roope, a content creator and advocate from LA, joins host Emily Hessney Lynch for the second episode in our Rare Disease Month mini series. In this conversation, we talk about what it's like living with a disability, when Tyler first knew he was different from other kids, meeting his wife online thanks to going live on TikTok, health anxiety, what he's lost as his SMA progresses, and the strange, bittersweet feeling of learning about how younger kids with SMA are getting treatment faster now.
We also dive into Tyler's career as a content creator, exploring how the wasteland of weirdness on TikTok Live during COVID inspired him to start creating content, the pressure of not squandering your platform even when you need a mental health break, making content you're proud of, giving people grace online, and how he wants to branch out from disability content to talk about other topics. It was a thoughtful, enlightening conversation—and a funny one too! Tyler's cat made an appearance for a portion of the recording session. We hope those moments bring a smile to your face 😻
Links:
- Tyler's video that we discuss in the episode about playing musical chairs at a birthday party as a kid.
- How to Prepare for Natural Disasters if You Have a Disability, New York Times article Tyler was featured in
- Check out Tyler's TikTok, Instagram, and website.
- To learn more and support the SMA community, check out Cure SMA!
- Missed the first episode in the Rare Disease Month mini series? Catch our interview with child neurologist & dad Sam Mackenzie here.
- Emily's Instagram & website.
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