From Patient to Advocate - Hear from the Director of Cure HHT with Marianne Clancy
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From Patient to Advocate - Hear from the Director of Cure HHT with Marianne Clancy
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概要
Call from Friday February 6th, 2026 featuring Marianne Clancy, CEO of Cure HHT.
Ms. Clancy has been CEO of Cure HHT for 24 years. Under her leadership, she initiated the Cure HHT research grant funding program to established and young researchers. Under her tenure, through the investment of $3 Min seed grants since 2004, HHT research funding has been leveraged nearly $60M in private and public investment. She has been instrumental in providing the patient voice to the design of HHT clinical research trials.
Marianne has expanded access to expert HHT care through the establishment and management of 33 HHT Centers of Excellence in North America and 25 centers globally. Her work in obtaining release of the HHT gene patents led to the launch of genetic testing for HHT in North America. Her team has led collaborations to enable the robust growth of the International Scientific Conferences in HHT since 2001 as the sole sponsor of these convenings.