Family Flowers Only with Craig Coady
カートのアイテムが多すぎます
カートに追加できませんでした。
ウィッシュリストに追加できませんでした。
ほしい物リストの削除に失敗しました。
ポッドキャストのフォローに失敗しました
ポッドキャストのフォロー解除に失敗しました
Family Flowers Only with Craig Coady
-
ナレーター：
-
著者：
This week I sit down with Craig Coady, a father who has faced an extraordinary amount of heartbreak and who is now fighting with everything he has for his son.
Craig speaks about his wife Della, who is living with Huntington’s disease and is now in full-time care, and their two boys, Rory and Paudie, who were both diagnosed with the rare and progressive condition Friedreich’s ataxia. Last year, Craig faced the unimaginable when 13-year-old Rory passed away as a result of the disease.
Today his 16-year-old son Paudie is living with the same condition, and Craig is campaigning for access in Ireland to Skyclarys, the first treatment for Friedreich’s ataxia, which can slow the progression of the disease.
This is a conversation about enormous loss, a father’s love, and a family who have already endured so much but above all, it’s about Craig’s determination to keep fighting for his son and for hope.
We mentioned at the end of the conversation that there is a march in Dublin this Sunday August 23rd beginning at 12 noon from the Garden of Remembrance in Dublin to Custom Quay House. If you can at all we would love you to get out and support