『FabryCast』のカバーアート

FabryCast

FabryCast

著者: Canadian Fabry Association
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このコンテンツについて

The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry.


Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space.


Canadian Fabry Association
衛生・健康的な生活
エピソード
  • Intentional Living and Awareness with Linda Quaranta
    2025/07/17

    In this episode, we are joined by Linda Quaranta - a licensed EMDR therapist who also happens to be living with Fabry disease herself.

    What you'll discover:
    *How to find purpose while managing chronic illness
    *The powerful connection between trauma and physical health
    *How EMDR therapy can be a game-changer for healing emotional wounds
    *Real strategies for building resilience and community support

    Linda opens up about her personal Fabry journey and shares professional insights on how intentional living and awareness can transform our relationship with chronic illness. This isn't just about surviving - it's about thriving.

    Perfect for: Anyone navigating health challenges, caregivers, or those interested in the mind-body connection and trauma healing.

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    47 分
  • A Modern Era in Cardiac Care: Fabry Disease, AI, & the Power of Partnership with Dr. John Jefferies
    2025/06/18

    In this conversation, Dr. John Jeffries discusses the complexities of Fabry disease and the importance of a strong patient-physician partnership in managing cardiac care. He emphasizes the role of wearables and AI in monitoring patient health, the significance of early warning signs, and the need for effective communication between patients and providers. Dr. Jeffries also addresses common myths about Fabry disease and highlights the potential for future advancements in care, advocating for patient empowerment and lifestyle changes to improve health outcomes.

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    42 分
  • Fabry and Mental Health with Christine Leighland
    2025/03/18

    How does Fabry disease impact mental health? What role do anxiety, pain management, and emotional well-being play in the patient journey? Julia Alton and Christine Leighland explore these questions, discussing coping strategies like mindfulness and cognitive behavioral therapy. How can acceptance and self-compassion make a difference? Why is psychotherapy so important? They also dive into the Be Rare, Be You campaign, the challenges of tough decisions, and the vital role caregivers play.

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    53 分
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