Almost everyone knows someone who has Alzheimer’s Disease. For many of us in The Sandwich Generation, this diagnosis was also the moment we became caregivers for our loved ones. But it’s all so confusing - is it Alzheimer’s? Is it Dementia? How do I bring up this conversation with my parents? Am I genetically dispositioned to get this too? WTF!

In this episode, co-hosts Eliesa Johnson and Robyn Frank have an incredibly candid and informative conversation with Dr. Elizabeth Edgerly, Senior Director of Community Programs and Services at the Alzheimer’s Association. Dr. Edgerly shares her personal story of walking alongside her mother with Lewy Body Dementia, along with answering all our questions - and giving HOPE to the future of Alzheimer’s. This episode is for us all - what we can do for Alzheimer's prevention, knowledge about the latest groundbreaking treatments and most importantly - how we, as caregivers, can bring humanity and Person Centered Care to our loved ones!

Takeaways

The difference between Alzheimer’s and Dementia.

Getting the correct diagnosis is crucial for treatment.

What to do when you notice cognitive changes in your parent.

Explaining the early, middle and late stages of Alzheimer’s.

Lifestyle changes can significantly impact brain health and reduce risk.

Genetic factors play a role in Alzheimer's risk, but lifestyle can mitigate this.

Hormonal changes in women may increase Alzheimer's risk and with caregiving, it’s a double whammy.

Support resources are available for caregivers and those diagnosed at ALZ.org.

Links and Resources:

Alzheimer’s Association Website

The 10 Warning Signs of Alzheimer’s Worksheet

My ALZ Journey - a new app brought to you by the Alzheimer's Association that puts all of their resources in one easy place for people who are first diagnosed

The Empowered Caregiver - Support Groups, Local Chapters and Online Community for caregivers to those with Alzheimer’s and Dementia.

24/7 Helpline - Yes, this helpline is still a thing AND a useful tool when you need help directly in the moment! A professional staff can guide you through all of your questions, day or night!

Trial Match - Are you interested in being a part of a clinical research study? See if you qualify and what studies are happening now!

Chapters

00:00 Introduction to Dr. Elizabeth Edgerly

25:03 The Comfort of Nostalgia: Peanut M&Ms and Family Bonds

27:27 Preserving Dignity

30:36 Early, Middle and Late Stages of Alzheimer's

35:12 The Importance of Early Diagnosis

38:59 Emerging Treatments and Blood Tests for Alzheimer's

45:54 Understanding Amyloid and Neurofibrillary Tangles

53:47 Hormonal Health and Alzheimer's

01:00:52 Resources for Alzheimer's Caregivers

01:04:02 Real Talk