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A twin birth, a smooth labour and then a jolt of fear. One baby thriving, the other struggling to breathe. That’s where Cherie’s story begins and it never lets go. We follow her from the long months of “wait and see,” through a 16‑month diagnosis of Williams syndrome, to the everyday reality of feeding battles, surgeries, toilet training that took years and the constant recalibration that special needs parenting demands. Along the way, a marriage fractures under the weight of appointments and court dates and a mother learns to rebuild her confidence, find her voice and create what she couldn’t find, a community for families in Western Australia navigating Williams syndrome.

We talk frankly about the system. Reports can praise “strengths” that look good on paper and still miss the risks that make independent living unsafe. Cherie lays out the stop‑start road to Supported Independent Living, respite that changed everything and NDIS rejections that hinged on language rather than lived reality. You’ll hear what planners rarely see, that using an iPad doesn’t mean you can safely cross a road, manage medication or cook a meal. We dig into what effective documentation looks like, why functional impact matters more than task completion and how to advocate without burning out.

The heart of this conversation is love and endurance. Cherie lifts the veil on the quiet burdens shouldered by siblings, the bright, affectionate nature often seen in Williams syndrome and the patience it takes to meet repetition with warmth. She also shares the searing loss of her mum, the daily rock who helped hold everything together and the way grief collides with rosters, school exits and adult services that don’t fit neatly. Through it all, she names the non‑negotiables that keep carers afloat by saying yes to help, setting boundaries and scheduling rest like a prescription.

If you’re a parent, carer, educator or advocate, this story offers solidarity, practical insight and a reminder of what good support should deliver. A safer, richer life for the person with disability and the chance for their family to be family again. Listen, share with someone who needs it, and leave a review to help more carers find this space.

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Music Credit: Cody Martin - Sunrise (first 26 episodes) then custom made for me.

Disclaimer: The views, opinions, and stories shared on this podcast are personal to the host and guests and are not intended to serve as professional advice or guidance. They reflect individual experiences and perspectives. While we strive to provide valuable insights and support, listeners are encouraged to seek professional advice for their specific situations. The host and production team are not responsible for any actions taken based on the content of this podcast.