『Episode 50 With Ruby Jean』のカバーアート

Episode 50 With Ruby Jean

Episode 50 With Ruby Jean

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In the fiftieth episode of HC&U, we interview Ruby.

Ruby is a patient with classical HCU living in Australia. She shares her journey with homocystinuria and goes into detail about her experience with clinical trials.

During Lindsey's Low Pro Bitesss, we discuss chili cheese tots.

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Ruby's Story

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

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