Episode 2 - Raising Soul: Rare Disease, Rare Strength
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Episode 2 - Raising Soul: Rare Disease, Rare Strength
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Welcome back to The Walk.
This week I deep dive into something extremely personal and something that I have battled heavily with for the last 4 years. My son Soul was born unexpectedly with a very rare condition called SENS - Scalp Ear & Nipple Syndrome.
There is little to know about this condition and very few medical cases of it in history. Soul seems to have the worst case of/one of the more severe cases of it. It's been a very tricky introduction into fatherhood, parenthood & the next step of life.
We will cover topics surrounding the birth, mental battles, embracing change, rebuilding yourself and much more.
I just want to say that this may trigger some people so please don't feel inclined to have to listen to the whole podcast. To all families out there going through the same struggles just know you are not alone.
Thanks for tuning in and walking this road with me.
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