Send us Fan Mail

A living donor says "yes." The transplant center says "no." What happens next?

This week on Donor Diaries, we sit down with Diane Hollingsworth, President and CEO of Eversight, a longtime leader in organ and tissue donation, and a two-time kidney transplant recipient. Diane has spent decades helping restore sight through cornea donation while also navigating the transplant journey herself, giving her a perspective that's both deeply personal and professionally unique.

Diane's kidney disease was discovered during a high-risk pregnancy complicated by preeclampsia. She shares what it was like balancing a newborn in the NICU, young children at home, and the reality of starting dialysis before receiving a life-changing kidney from her mother. That first transplant lasted an incredible 33 years.

When it came time for a second transplant, Diane faced an obstacle many families don't expect. One transplant center declined her husband as a living donor, while another approved him. We discuss why transplant centers can make different decisions, how committee reviews influence the process, and how kidney paired exchange allowed her husband, Dave, to donate to a stranger so Diane could receive a compatible kidney before ever needing dialysis again.

Along the way, we also talk about:

• What the transplant evaluation and listing process really looks like
• Why wait times vary depending on where you're listed and your blood type
• How researching transplant centers and asking questions can open new opportunities
• A beautiful real-life example of how kidney paired exchange changes lives
• The emotional reality of recovering while your donor is in another hospital

Then we explore a topic we haven't covered before on Donor Diaries: cornea donation.

As President and CEO of Eversight, Diane explains what cornea donation is, what tissue is actually transplanted, how eye banks recover and transport donated tissue, why there isn't a waitlist for corneal transplants in the United States, and how donated tissue is restoring sight through transplantation while also advancing research and medical education.

Whether you're waiting for a transplant, considering becoming a living donor, or simply want to better understand how the donation system works, Diane's story is filled with practical advice, hope, and a reminder that persistence, advocacy, and asking the right questions can make all the difference.

Links

Eversight
Diane Hollingsworth

Donor Diaries Website
Donor Diaries on Facebook
GiftWorks Website
Connect with Laurie Lee

Send us Fan Mail

In this episode of Donor Diaries, we sit down with Dr. Amy Waterman, a national leader in transplant health services research and patient engagement at Houston Methodist, to talk about what we know about living donors, and what we are still learning.

Amy has spent her career studying how to help patients and living donors make informed, confident decisions. We talk about why long term living donor research takes decades, why comparison groups matter when studying donor outcomes, and why understanding donor motivations is so important when designing education and support programs.

We also talk about something that does not get discussed enough: donors are not all the same. Amy shares three common donor motivation profiles and how understanding these differences helps transplant centers better support donors before and after surgery. We also talk about donor identity, why some donors stay deeply connected to the donor community while others quietly move on with their lives, and what both experiences can teach us.

Finally, we talk about what helps right now. Peer mentoring. Reducing financial barriers. Education that respects that different donors are motivated by different things. And the growing role of digital storytelling, which allows people who are considering donation to hear real voices and real stories in a low pressure way.

This is a thoughtful conversation about research, decision making, and the very human reasons people choose to become living donors.

Dr. Amy Waterman is a national leader in transplant health services research and serves as Director of Patient Engagement and Education at Houston Methodist. Her work focuses on improving access to transplant, supporting informed decision making, and developing education and engagement tools for transplant patients and living donors. She has led numerous research initiatives, including digital storytelling and patient education programs, and has received nearly $30 million in federal grant funding. Dr. Waterman has authored more than 125 peer reviewed publications and has been recognized by the American Society of Transplantation as a Clinician of Distinction.

Links

The Waterman Lab website
Explore Transplant
Living Donor Collective
Livingdonorstories.org

Donor Diaries Website
Donor Diaries on Facebook
GiftWorks Website
Connect with Laurie Lee

Send us Fan Mail

Denice received her father’s kidney at age 13, decades before modern transplant protocols were common and pediatric dialysis existed. Fifty-eight years later, she is still thriving and using her story to inspire others to be donors.

Denice reflects on a childhood shaped by loss, a diagnosis that changed everything, and a mother who refused to accept no as an answer. She shares the extraordinary circumstances that led to her transplant, paints a vivid portrait of her donor father, and opens up about how grief and gratitude have coexisted throughout her life. With clarity and compassion, Denice also talks about being intersex, reminding us that biology is more complex than simple labels and that acceptance can be life changing.

We explore why her transplant may have lasted so long, including an unusually good match, consistent habits, and decades on azathioprine, along with the medical challenges that came with lifelong immunosuppression. Denice speaks candidly about aging with a transplant, staying active, and continuing to show up fully in the world.

What resonates most is her call to action. Denice invites more healthy people to consider non designated living donation. She describes the halo effect donors often experience, the relief it brings to recipients and families, and the quiet joy that comes from turning courage into connection. Along the way, we honor the legacy of long-term transplant pioneers like Butch Newman and Guinness record holder Joanna Rempel, placing Denice’s journey within a larger story of medical progress and human generosity.

If you have ever wondered whether one decision can ripple outward and change countless lives, this conversation offers a powerful answer. Listen, share with someone who needs hope, and if it moves you, subscribe, rate, and leave a review so more people can find these lifesaving stories.

Links

Ventura County Star Article

UCLA Article

Denice on YouTube

Denice’s 2025 Presentation for the American Society of Transplantation (AST)

About Fraser Syndrome

Donor Diaries Website
Donor Diaries on Facebook
GiftWorks Website
Connect with Laurie Lee