『Donor Diaries』のカバーアート

Donor Diaries

Donor Diaries

著者: Laurie Lee
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概要

Donor Diaries is a podcast that delves into the beauty and complexity of living organ donation. Tune in to hear extraordinary stories of people who choose to share their organs and give the gift of life. The world of kidney and organ donation is a powerful testament to kindness, love, and the human spirit.
With over 90,000 individuals on the kidney transplant waitlist and about 13 people dying each day while waiting, the urgency is real. One in three Americans is at risk for chronic kidney disease, and one in nine already suffers from it, often unknowingly.
Donor Diaries offers unfiltered narratives from living donors and candid insights from transplant experts, aiming to elevate the conversation around organ donation. Our goal is to bring this crucial issue to the forefront, so no patient has to wait in vain or suffer needlessly.


© 2026 Donor Diaries
社会科学 衛生・健康的な生活 身体的病い・疾患
エピソード
  • Workplace Support That Changes Everything | 38
    2026/03/03

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    What if a simple HR policy could help save someone’s life? In this episode, Brooke Iarkowski, Transplant Community Program Manager at the American Society of Transplantation, shares how paid leave transforms the living donor journey from a financial gamble into a supported reality. Brooke brings over ten years of experience in the transplant and donation field and a deeply personal connection to the mission. Witnessing both her mother and brother receive kidney transplants inspired her commitment, and in October 2023, she became a non-directed living kidney donor herself. Her lived experience gives her a unique perspective on the patient, donor, and family caregiver journey.
    We explore how Brooke leads national initiatives that center the patient and donor voice, including the Power2Save campaign and the Living Donor Circle of Excellence. She explains how the Circle of Excellence helps companies adopt clear, humane policies that provide eight to twelve weeks fully paid leave for donor evaluation, surgery, and recovery. Brooke highlights why the business case is strong: medical costs are billed to the recipient’s insurance, utilization rates are low, and company culture benefits are significant. Thoughtful HR policies remove the number one barrier to donation (lost wages) while signaling leadership support for employees who step up to save a life.
    This conversation also addresses the mental and emotional aftermath of donation. Brooke speaks candidly about post-donation fatigue and a brief depressive period, and how being seen as a whole person made all the difference. Realistic expectations and proper support make donation safer and more sustainable for everyone.
    If you have ever thought, “I would donate, but I cannot afford the time,” or if you are a leader looking for a high-impact, low-cost benefit that saves lives, this episode is for you. Learn how to bring the Circle of Excellence to your workplace, get practical steps for starting the HR conversation, and hear why thoughtful policies can turn goodwill into a kidney or liver that moves someone off the waitlist.

    Links

    Circle of Excellence

    Power to Save

    American Society of Transplantation (AST)

    Donor Diaries Website
    Donor Diaries on Facebook
    GiftWorks Website
    Connect with Laurie Lee

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    35 分
  • From One Kidney To Many | EP 37
    2026/02/03

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    One kidney can change many lives—if we let it start a chain. We sit down with Dr. John Friedewald, transplant nephrologist at Northwestern Medicine, to unpack a breakthrough: using a deceased donor kidney to initiate a living donor chain that moves multiple recipients off the waitlist and ultimately delivers a living kidney back to a service member at Walter Reed.

    We break down how kidney paired donation works, why non-directed donors supercharge matching, and what changes when a deceased donor becomes the chain starter. Dr. Friedewald explains the military-share pathway, where high-quality deceased kidneys are screened for parity with prospective living donor outcomes, then routed via directed donation to a match in exchange. The recipient’s incompatible living donor pays the gift forward, extending the chain until an unmatched donor returns a living kidney to Walter Reed. Along the way, we dig into logistics, OPO coordination, timing windows, and why this process fits within familiar directed donation workflows.

    Fairness and outcomes are front and center. We address concerns about blood type O equity, share early data showing more than double the impact per deceased donor, and discuss how programs monitor blood type flows to avoid disadvantaging anyone on the deceased list. For patients, we explore the real tradeoff between waiting for a theoretical living match versus accepting a filtered, high-quality deceased offer today—especially when months more on dialysis raises risk. With lessons from Italy’s regional rollout and leadership from centers like Northwestern and Michigan, this approach is poised to scale and become a standard tool that magnifies each gift and shortens waits.

    Subscribe, share this episode with someone curious about organ donation innovation, and leave a review with your biggest question about deceased donor–initiated chains. Your feedback helps more people find these life-saving ideas.

    Links

    Northwestern Medicine Transplant

    The Alliance for Paired Kidney Donation

    Walter Reed Transplant

    Military Share Deceased Donor Initiated Chains (American Journal of Transplantation)

    Utilization of Deceased Donor Kidneys to Initiate Living Donor Chains (American Journal of Transplant)

    Kidney Paired Donation Chains Initiated by Deceased Donors

    Donor Diaries Website
    Donor Diaries on Facebook
    GiftWorks Website
    Connect with Laurie Lee

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    33 分
  • Choosing Life: Renal Warriors Wilson & Amy | EP 36
    2026/01/06

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    In this episode of Donor Diaries, we sit down with transplant recipient Wilson Du and living kidney donor Amy McCann, two people whose stories intertwine through determination, community, and the belief that choosing life is a daily practice.

    Wilson spent five and a half years on dialysis before receiving his transplant in 2022. After a doctor told him he needed to lose 100 pounds or forget about a transplant, he confronted the shock, the shame, and the painful first steps toward change. The words choose life stayed with him and became the foundation for a journey that carried him from a ten-foot walk to an Olympic-distance triathlon and a mission to help others Outshine Their Pain. Today, Wilson is The Renal Warrior, inspiring patients to fight for their second chance.

    Amy first heard Wilson’s story at their community gym and immediately volunteered to be tested as his donor. She was denied for BMI and could have stepped away, but she chose to turn the rejection into resolve. Nearly 100 pounds later, another donor matched with Wilson, yet Amy kept going. She donated her kidney to a stranger on her birthday, transforming her journey into a gift she had fought hard to give. At The Mission HQ, she now leads the Warrior Program, supporting patients and community members who walk through the doors looking for hope.

    Together, Wilson and Amy share how Mission HQ became a space where dialysis patients, survivors, and neighbors can move, breathe, and rebuild without judgment. Their message is simple and powerful. Consistency matters more than intensity. Rest when you need to, and then keep going. Small steps count. Hope is built one choice at a time.

    Links:

    The Mission HQ

    Donor Diaries Website
    Donor Diaries on Facebook
    GiftWorks Website
    Connect with Laurie Lee

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    34 分
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