Doing better where it counts: Bringing rare disease care to underserved populations
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Doing better where it counts: Bringing rare disease care to underserved populations
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概要
We are on the brink of new solutions that include accessing specialized
care through telemedicine, diagnosis through mail-in specimens, and
computer-aided remote phenotyping. This webinar discusses how new
systems and technologies can close the chasm that prohibits those with
rare diseases living in underserved countries and communities from
getting critically needed care.
https://www.fondation-ipsen.org/webinar/webinar-bringing-rare-disease-care-to-underserved-populations/
with:
Consuelo Wilkins, M.D., MSCI (Vanderbilt University Medical Center, Nashville, TN)
Linda Goler Blount, M.P.H. (Black Women’s HealthImperative, Atlanta, GA)
Nakela L. Cook, M.D., M.P.H. (Patient-Centered Outcomes Research Institute (PCORI), Washington, DC)
Jamie Sullivan, M.P.H. (EveryLife Foundation, Washington, DC)
Sean Sanders, Ph.D. (Science/AAAS, Washington, DC; moderator)
This podcast is adapted from a webinar broadcast by Science magazine, with the sponsorship of Fondation Ipsen.
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