エピソード

  • Fragile Rights: Ehlers-Danlos, Invisible Pain, and the System That Fails
    2025/12/16

    In this raw and essential conversation, host Keith Murfee- DeConcini sits down with poet and author Jessica MacLean. Jessica shares her lifelong journey navigating Ehlers-Danlos Syndrome (EDS) and spina bifida occulta—invisible conditions that affect every system in her body. From experiencing her first migraine at age seven to surviving a literal broken back caused by a simple change in position, Jessica details the profound physical toll of living with a tissue connectivity disorder. The discussion takes a harrowing turn as Jessica recounts her recent experience being "wrongfully Titled" (Title 36), a legal process that stripped her of her rights and placed her in a psychiatric facility ill-equipped to handle her complex medical needs. We explore the dangerous gap between mental health protocols and physical disability awareness, the trauma of medical institutionalization, and how the "positive vibes only" expectation from society ignores the reality of chronic suffering. Despite the systemic failures and constant pain, Jessica shares how she finds sanctuary in the creative community of Prescott, Arizona—using poetry, music, and the wildlife in her yard to find "wild care where there is no cure."

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    58 分
  • Beyond the Pews: Humanism, Inclusion, and the Jewish Experience
    2025/12/09

    In this episode, we sit down with Rabbi Adam Shalom and Rabbi Jody Kornfeld, editors of Contemporary Humanistic Judaism. We explore the bold concept of identifying as "secular and Jewish" at the same time—proving that heritage is about more than just dogma. The Rabbis pull back the curtain on how this movement empowers individuals to take ownership of their culture. From using "Bimitzvah" as a gender-neutral rite of passage to modifying traditional ceremonies for those with mobility and sensory challenges, we discuss how the humanistic lens turns obstacles into solutions. It’s a conversation about saying what you mean, meaning what you say, and making sure everyone has a seat at the table—literally.

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    57 分
  • The Dynamic Duo and the 80-Year Legacy of Children's Health
    2025/12/02

    In this episode, host Keith Murfee Deconcini welcomes the "dynamic duo of children's health care," Jared Perkins and Gemma Thomitz, from the Children's Clinics in Tucson, Arizona. Jared and Gemma detail the clinic's evolution from a 1940s polio clinic into a cutting-edge Multi-Specialty Interdisciplinary Clinic (MSIC)—a rare model where comprehensive care, primary care, and Arizona's largest pediatric rehab program are all offered under one roof.

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    45 分
  • The Enhancement of Lives: Anita Hollander on Advocacy, Awards, and The Rise
    2025/11/25

    Anita Hollander, veteran performer and disability advocate, joins the show to share the profound philosophy that guides her life and work. She discusses the honor of receiving the Harold Russell Award, reflecting on a lifetime dedicated to representation and 'pushing the needle forward' for the disability community. Hear her wonderful stories about being presented the award by Sean Astin and the inspiration she drew from her late father. Plus, Anita offers a sneak peek into her exciting upcoming projects, including her involvement with the powerful new musical The Rise, set to premiere in Paris.

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    53 分
  • Memoirs, Music, and the Fight to Heal – with Jasmine Singh
    2025/09/07
    Season 4 Bonus Episode 6 Jasmine Singh is the Bestselling Author of “Saved By Depeche Mode: An Epic Journey of Healing & Remission Through Music.” After spending over 20 fulfilling years in a successful sales career—and living with a disability for more than 40 years— she shifted her focus to healing in all areas of her life: physical, emotional and spiritual. This is the second time she has required the support of Social Security Disability to give her body the time and space it needed to recover and rebuild. She has undergone 36 surgeries in the last 30 years, each […]
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    1 時間 16 分
  • Disability Empowerment Now: The Spiritual Recovery of Depeche Mode Part 3
    2025/08/31
    Season 4 Bonus Episode with Alaina Morin Part 3 Keith is a huge fan of Depeche Mode and along with superfan Alaina Morin, they discuss the genius that is their music and the geniuses behind their music. They go through the band’s albums and discuss the cultural importance of their work. Alaina Morin works with adults with intellectual disabilities through Community Case Management and as an Ed Technology in special education. In her spare time Alaina enjoys puzzling, concerts, traveling, creating ideas for stories and long discussions about anything. Disability Empowerment Now is produced by Pascal Albright. Season 4 […]
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    1 時間 19 分
  • Disability Empowerment Now: The Spiritual Recovery of Depeche Mode Part 2
    2025/08/26
    Season 4 Bonus Episode with Alaina Morin Part 2 Keith is a huge fan of Depeche Mode and along with superfan Alaina Morin, they discuss the genius that is their music and the geniuses behind their music. They go through the band’s albums and discuss the cultural importance of their work. Alaina Morin works with adults with intellectual disabilities through Community Case Management and as an Ed Technology in special education. In her spare time Alaina enjoys puzzling, concerts, traveling, creating ideas for stories and long discussions about anything. Disability Empowerment Now is produced by Pascal Albright. Season 4 […]
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    59 分
  • Disability Empowerment Now: The Spiritual Recovery of Depeche Mode Part 1
    2025/08/26
    Season 4 Bonus Episode with Alaina Morin Keith is a huge fan of Depeche Mode and along with superfan Alaina Morin, they discuss the genius that is their music and the geniuses behind their music. They go through the band’s albums and discuss the cultural importance of their work. Alaina Morin works with adults with intellectual disabilities through Community Case Management and as an Ed Technology in special education. In her spare time Alaina enjoys puzzling, concerts, traveling, creating ideas for stories and long discussions about anything. Disability Empowerment Now is produced by Pascal Albright. Season 4 is dedicated to […]
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    1 時間 9 分