Welcome to Every Conversation Counts!

When Jonathan Bracey’s son George was diagnosed with a rare genetic condition - Mosaic Variegated Aneuploidy (MVA) Syndrome - his world changed overnight.

What began as a desperate search for answers became a powerful mission: to connect, support, and give hope to other families facing the unknown.

In this deeply moving conversation, Jonathan speaks with host Toni Jennings about what it means to stay curious when the answers are hard, how resilience is a choice we make daily, and why he founded The MVA Society, a charity that’s now giving rare families across the globe a voice.

Together, they explore the emotional grit it takes to navigate the rare disease space, the power of advocacy through communication, and how every conversation - no matter how small - can make a lasting difference.

In this episode:

• The conversation that changed everything for Jonathan and his family
• What it really means to “show up” when life feels impossible
• How asking “why” became a lifeline
• Why storytelling and connection are at the heart of advocacy

For more information about the MVA Society or to find out how you can help, please head to www.mvasociety.org

This podcast was brought to you by Every Connection Counts, a global performance consultancy specialising in improving communication. If you’re curious about the work we do or how we can help, please head to our website for more information: https://everycc.co.uk/

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