Cri du Chat Awareness Day - Tony Buti and Alkira
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Cri du Chat Awareness Day - Tony Buti and Alkira
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This week we are revisiting an insightful conversation from last year with prominent author, lawyer and Attorney General of Western Australia Tony Buti. The discussion delves into his personal experience as a father raising a child with Cri-du-chat, and the struggles Tony and his wife Mandy faced along the way.
On the 5th day of the 5th month we recognise 5P or Cri Du Chat Syndrome with an international awareness day to shine a light on the condition. Cri Du Chat Syndrome is a rare genetic condition cause by a deletion on chromosome 5, affecting 20,000 to 50,000 births. On this day we not only recognise a rare condition but amplify lived experiences like Alkira's.
We very much appreciated Tony coming in to talk with us; it was a moving and informative conversation.
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