Contemplating Life – Episode 113 – “Benefits Battles and Dueling Diagnoses”
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In this episode, I am beginning a series that could possibly be the last of this podcast. It might not be. But it’s a series I need to get finished in case this is the last.
Unless I pull off a minor logistical miracle sometime in the foreseeable future, I will be leaving the house that I have lived in since I was a few weeks shy of my fourth birthday. I will be moving into a skilled nursing facility where I hope to live out my days in comfort.
This series will chronicle my battles to receive the benefits I need to live a safe and fulfilling life. It will lead up to my current situation, which has led me to conclude that it’s time to move on to a different setting. I have no idea how long this series will take. It’s a long story.
Links of Interest
Spinal Muscular Atrophy (SMA): https://en.wikipedia.org/wiki/Spinal_muscular_atrophy
Duchenne Muscular Dystrophy (DMD): https://en.wikipedia.org/wiki/Duchenne_muscular_dystrophy
Indiana Department of Vocational Rehabilitation: https://www.in.gov/fssa/ddars/brs/vocational-rehabilitation-employment/
Indiana Aged and Disabled Waiver: https://www.in.gov/medicaid/members/home-and-community-based-services/aged-and-disabled-waiver/
Indiana Development Disability Waivers: https://www.in.gov/medicaid/members/home-and-community-based-services/family-supports-waiver/
Developmental Disability Defined: https://www.in.gov/gcpd/developmental-disability/
An older document defining DD: https://www.in.gov/fssa/ddars/files/Eligibility_and_ICF_ID_DD_LOC_Determination_signed.pdf
Mensa International: https://en.wikipedia.org/wiki/Mensa_International
Types of trusts: https://blogs.iu.edu/sharedsolutions/2023/08/21/planning-for-the-future-special-needs-and-miller-trusts-explained/
Newspaper article about Special Needs Integrity agency: https://www.indystar.com/story/news/2015/11/16/nonprofit-accused-taking-millions/75886746/
Interview with Greg Fehribach: https://www.ibj.com/videos/interview-issue-2015-greg-fehribach
For more episodes: https://contemplating-life.com/
Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq