Congratulations, Not Condolences - Celebrating Down Syndrome with Jubilee Dueck-Thiessen
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Congratulations, Not Condolences - Celebrating Down Syndrome with Jubilee Dueck-Thiessen
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概要
Jubilee Dueck-Thiessen is the Executive Director of the Manitoba Down Syndrome Society. She started with MDSS as a student, spent years at L'Arche Winnipeg leading community programs and a major accessibility-focused art exhibit, and has now returned to MDSS to lead the organization.
In this episode, she makes a case for seeing disability not through a medical lens, asking what's wrong and how to fix it, but through a social one: asking what barriers society has built, and how we start tearing them down.
From reframing Down syndrome diagnoses as something to celebrate rather than apologize for, to questioning whether our standards of independence and productivity were ever designed for everyone, Jubilee brings a perspective on disability rights and inclusive community that's worth sitting with.
Connect With Manitoba Down Syndrome Society:
Website: https://manitobadownsyndromesociety.com
Facebook: https://www.facebook.com/ManitobaDownSyndromeSociety/
Instagram: https://www.linkedin.com/company/mbdownsyndrome
LinkedIn: https://www.linkedin.com/company/mbdownsyndrome
Connect With Us
Facebook: facebook.com/accessiblefuture
Instagram: instagram.com/accessiblefuture
Linkedin: linkedin.com/company/accessible-future/
Email: accessiblefuturepod@gmail.com
Chapters:
00:00 — Introduction
01:21 — Meet Jubilee Dueck-Thiessen
03:21 — From university volunteer to Executive Director
05:19 — What MDSS does and who it serves
07:24 — The accessible future: barriers we need to remove
07:38 — Medical model vs. social model of disability
10:26 — Why the productivity mindset hurts everyone
11:19 — What to say when a family gets a Down syndrome diagnosis
12:40 — The Eden Project: an accessible art exhibit at L'Arche
17:11 — Barriers to accessing nature
18:57 — Mutual care: moving from one-way to community support
21:00 — The L'Arche model and how it shaped Jubilee's work
22:29 — The cliff: what happens when young adults leave the school system
23:45 — Why disability organizations are being asked to do more with less
26:08 — How government and agencies can better align
26:43 — Burnout in the nonprofit sector and leading as a neurodivergent person
30:12 — Wrap up