Tricia Fitzgerald brings a deeply personal and candid perspective to the experiences of long-term caregiving within a family affected by chronic illness. Drawing from over two decades of advocacy and professional work supporting children and families, Tricia’s story is rooted in her own journey—beginning with undiagnosed chronic illness symptoms as a child and culminating in the late discovery of Ankylosing Spondylitis and rheumatoid arthritis in adulthood. These diagnoses not only shaped her own life but also set the stage for her caregiving journey when several of her six children began exhibiting similar autoimmune conditions, adding layers of both challenge and resilience to her role as a mother and advocate.

Through her story, Tricia highlights the complexities of navigating the medical system, including the frequent dismissal of symptoms, gender disparities in medical treatment, and the persistent need to advocate fiercely for proper diagnoses and care. She candidly shares the toll caregiving takes on personal well-being, marriage, and professional life, while emphasizing how communication, mutual support, and humor—such as the family’s use of “mashed potatoes” or “mockingbird” as de-escalation cues—have fortified her marriage and family bonds. Tricia also reflects on the importance of self-care, finding joy in small moments, and encouraging her children to develop their own voices as advocates as they transition into adulthood.

Her journey is one of perseverance, love, and a relentless pursuit of both care and authenticity, making her story both inspiring and deeply relatable for caregivers everywhere.

About Tricia:

Tricia Fitzgerald, M.Ed., is a seasoned leader in social and family services with over 20 years of experience in education, advocacy, and program management. As the Program Director for Maryville Crisis Nursery, she oversees critical services for families in crisis. Her expertise is further honed by her role as Adjunct Faculty in the College of Education at DePaul University, where she has trained and supervised aspiring teachers since 2005.

Tricia is also the founder of Gentle Beginning, Inc., through which she provided childbirth education, doula services, and family advocacy for a decade. Her professional passion for supporting families is deeply personal; as a mother of six children, all with chronic health conditions, she brings unparalleled empathy and firsthand knowledge to her work. Tricia is a dedicated advocate, committed to ensuring every child and family has the resources and support they need to thrive.

Thank you to sponsor: CareScout

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Follow us on Instagram!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

Neal Shah’s journey, showcases the impact of caregiving on individual lives and the broader healthcare system. Raised in a close-knit immigrant family, Neal's values were shaped early by the examples set by his parents and grandparents. After building an impressive career in finance, a series of personal experiences as a caregiver—first supporting his grandfather through end-of-life care, then facing his wife’s severe illness—transformed his outlook and priorities. He became intimately aware of both the emotional toll and practical challenges caregivers face and the systemic flaws that make caregiving in America so difficult.

These experiences motivated Neal to leave his high-powered finance career to focus on creating social impact. He founded Carry Ya, a not-for-profit project that connects families in need with qualified, motivated student caregivers at affordable rates, disrupting the expensive, often impersonal agency model.

Neal is also the author of the book "Insured to Death," which exposes the failures of the American health insurance system, and he launched Counterforce Health, an AI-powered platform that empowers patients and caregivers to fight insurance denials. Neal’s innovative, empathetic responses to systemic challenges underline his commitment to honoring caregivers as the backbone of the healthcare system and ensuring that their support, as well as that of care recipients, is financially and emotionally sustainable.

About Neal:

America's Chief Elder Officer. CEO of CareYaya Health Technologies and Chairman of Counterforce Health. Working hard to improve healthcare. Author of #1 Bestseller in Health Policy, "Insured to Death: How Health Insurance Screws Over Americans - And How We Take It Back". After a successful career as a $250 million hedge fund manager, deeply personal caregiving experiences inspired a pivot to social entrepreneurship. Now, determined to transform care delivery through technology.

Building a rapidly-growing tech startup to expand access to affordable care. Pioneering cutting-edge AI applications and neurotechology to fundamentally elevate quality of life for those needing care. Motivated by creativity and humanitarian progress.

Leveraging experiences guiding multi-billion dollar investments to make an impact on improving care for our most vulnerable populations. Leading with both heart and analytical rigor.

Building unrivaled technical capabilities and strategic partnerships to establish CareYaya as America's leading launchpad for care innovation. Together, let's build a better future for care!

Thank you to sponsor: CareScout

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Follow us on Instagram!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

Zack Demopoulos’s story begins with his upbringing as the proud son of Greek immigrants, whose journey to the United States instilled in him a deep sense of gratitude, resilience, and responsibility. He shares how his family’s experiences shaped his values and work ethic, from working in his father’s restaurant as a teenager to pursuing higher education and a successful corporate career. Zack’s life took a dramatic turn in 2006 when he was suddenly thrust into the role of caregiver for his father after a major stroke, all while balancing a demanding job and a young family of his own.

Throughout the episode, Zack candidly discusses the emotional, logistical, and financial challenges of caregiving, including the complexities of sibling dynamics and the importance of open communication and planning. He reflects on the mistakes and lessons learned during his father’s illness, such as the need to involve siblings, have difficult end-of-life conversations, and seek out resources—even when they seem limited. Zack’s journey didn’t end with his father; he later became a key support for his mother, applying the hard-earned wisdom from his earlier experiences to ensure her well-being and dignity.

Now, Zack channels his expertise and empathy into advocacy for working caregivers. Drawing on his background in HR, home care, and personal caregiving, he collaborates with his partner Selma to develop resources and support systems for employees balancing work and caregiving responsibilities. Zack’s story is a testament to the resilience of caregivers and the critical need for greater awareness, support, and compassion in both families and workplaces.

About Zack:

Zack Demopoulos along with his partner Selma Archer founded ieadvocates llc, or Invisible Employee Advocates, a consulting firm created to support working caregivers by working with their employers. He has over 36 years of diverse experience working in the corporate and small business environments. His expertise spans across sales management; executive leadership; human resources; diversity, equity, and inclusion; small business; board leadership; and caregiving. Zack along with his wife Phyllis founded and operated a home care agency for 13 years, helping over 500 families care for their family loved ones, and hiring over 700 professional caregivers to provide that care.

Zack is a caregiver advocate as well as a caregiver--long distance for his mother who is in a nursing home in Charlotte NC. He commutes 1-2 x every four months to spend time with her and be her advocate.

Zack with his wife, Phyllis, reside in New Jersey and spend significant time with their family who live nearby and include 2 rescue dogs, three adult children, their spouses, and 3 grandchildren.

Thank you to sponsor: CareScout

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Follow us on Instagram!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network