Compassionate Care

著者: WVU Center for Excellence in Disabilities
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  • "Compassionate Care" is a podcast series tailored for students pursuing careers in pediatric medicine and families that are on a journey with a medically complex child. This series offers a unique perspective by centering on the experiences and stories of parents with medically complex children. Aspiring doctors, nurses, occupational therapists, physical therapists, social workers, and other healthcare professionals will gain valuable insights into the challenges, triumphs, and lessons of these families. The series aims to foster empathy, understanding, and a holistic approach to pediatric care by highlighting the vital role caregivers play in a child's medical journey. This is not only a podcast series but an opportunity for future pediatric healthcare professionals to gain a deeper understanding of the emotional aspects of their patients' lives. By listening to the voices of parents, students can better prepare to provide comprehensive care that considers both medical needs and emotional well-being. This podcast is sponsored by the West Virginia Department of Human Services, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and produced by the West Virginia University Center for Excellence in Disabilities.
    2025
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あらすじ・解説

"Compassionate Care" is a podcast series tailored for students pursuing careers in pediatric medicine and families that are on a journey with a medically complex child. This series offers a unique perspective by centering on the experiences and stories of parents with medically complex children. Aspiring doctors, nurses, occupational therapists, physical therapists, social workers, and other healthcare professionals will gain valuable insights into the challenges, triumphs, and lessons of these families. The series aims to foster empathy, understanding, and a holistic approach to pediatric care by highlighting the vital role caregivers play in a child's medical journey. This is not only a podcast series but an opportunity for future pediatric healthcare professionals to gain a deeper understanding of the emotional aspects of their patients' lives. By listening to the voices of parents, students can better prepare to provide comprehensive care that considers both medical needs and emotional well-being. This podcast is sponsored by the West Virginia Department of Human Services, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and produced by the West Virginia University Center for Excellence in Disabilities.
2025
エピソード
  • Episode 8: Building Parent-Caregiver Partnerships
    2025/04/01

    Expert guest, Dr. Annique Hogan explores how to create collaborative relationships between parents and healthcare professionals, recognizing that parents are integral members of the care team.

    Annique K. Hogan, MD is a complex care general pediatrician at The Children’s Hospital of Philadelphia (CHOP) and an Associate Professor of Clinical Pediatrics at the Perelman School of Medicine at the University of Pennsylvania. She has spent her career at CHOP, dedicated to the care of medically complex patients both in the inpatient and the ambulatory setting, being recognized with numerous awards for her work caring for these children and teaching in the field of complex care pediatrics. She is the Medical Director of the inpatient Complex Care Service, the founder and Medical Director of the CHOP Compass Care program, the Medical Director of Care Management, and the Medical Director for CHOP Home Care. She loves creating and improving systems of care for children with medical complexity, teaching about complex care, and caring for these incredible children and their families.

    Resources: ⁠What Parents of Children With Complex MedicalConditions Want Their Child’s Physicians to Understand

    View the transcript.

    Music: Daylight by JayJen

    Sponsored by the West Virginia Department of Human Services, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

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    1 時間 9 分
  • Episode 7: Navigating the Long Haul: Supporting Families Through Extended Medical Stays
    2025/04/01

    In this episode of "Compassionate Care," we dive into the impact of long-term hospitalizations on families and how healthcare providers can offer crucial support. During this discussion we explore how extended medical stays affect healthcare providers themselves. Discover ways to maintain empathy and professionalism while managing the emotional demands of caring for patients with prolonged needs. Discuss effective strategies for preparing families for the next phase of care. We provide actionable tips for medical teams to enhance their resilience and maintain a compassionate approach throughout extended patient care

    Shannon Parrish, our expert guest, is Neonatal ICU Lead Clinical Nurse at Johns Hopkins Hospital.

    She started there as a clinical nurse extern in 2013 and worked her way up the clinical ladder over the last 11 years.

    Shannon is passionate about bedside nursing, mental health, wellness and mindfulness. In the last two years, she has served as chair of her unit’s Welcoming Committee, for which she developed the NICU Mentorship Program, as well as a work-life wellness class for new-grad nurse orientation in an effort to help with retention and burnout.

    When Shannon isn’t taking care of babies in the NICU, she is a wife and mother of identical twin boys.

    Her journey into motherhood inspired her to improve mental health and wellness for her nursing peers. Experiencing a high-risk pregnancy and NICU stay was an eye-opening experience that renewed her passion for nursing and empathy for NICU families.

    View the transcript.

    Music: Daylight by JayJen

    Sponsored by the West Virginia Department of Human Services, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

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    1 時間 5 分
  • Episode 6: Cultural Competence and Diversity
    2025/04/01

    Understanding the unique needs of diverse families is essential. Cultural competency experts discuss ways to provide inclusive and sensitive care to families from various backgrounds.

    Join us in discussion with guest Dr. Gabrina Dixon. Dr. Dixon is a board-certified Pediatric Hospital Medicine (PHM) attending at Children’s National Hospital in Washington, DC. She is also an Associate Professor of Pediatrics at George Washington University School of Medicine and Health Sciences in Washington, D.C. Dr. Dixon enjoys being able to teach fellows, residents and medical students about general pediatrics and pediatric hospital medicine. Due to her love of teaching, Dr. Dixon received a Master of Arts in Education from George Washington University in 2018. In addition to her regular responsibilities, she is the director of Advancing Diversity in Academic Pediatrics (ADAP), a program at Children’s National aimed to increase the amount of underrepresented medical students who pursue academic pediatrics. Her research interests include diversity, equity and inclusion, and bias in medicine. She is the co-director of HEAR-PHM (Health Equity Academic Research in Pediatric Hospital Medicine), a health equity program funded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development of the National Institutes of Health.

    Opinions shared by the guests of the show are their own and do not represent the official views of their employers.

    View the transcript.

    Music: Daylight by JayJen

    Sponsored by the West Virginia Department of Human Services, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

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    50 分

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