『Caregivers SHARE, a St. Jude Podcast』のカバーアート

Caregivers SHARE, a St. Jude Podcast

Caregivers SHARE, a St. Jude Podcast

著者： St. Jude (SJCRH)
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A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.2023 衛生・健康的な生活 身体的病い・疾患
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  • Fertility Preservation Decisions, Part 2

    Fertility Preservation Decisions, Part 2
    2026/07/23
    Fertility preservation is not always the first thing a family thinks about during a serious illness. But fertility preservation can shape a patient’s future in important ways.

    In this episode, Tekeima Townsend-Billups, MDiv, and Kari Bjornard, MD, talk with cancer survivor Keragan about her experience of going through fertility preservation years after completing cancer treatment. Keragan was diagnosed with Stage IV Hodgkin lymphoma at 17 years old.

    Now 25 years old and an emergency room nurse, Keragan shares her journey with fertility after cancer, including what she wishes she had known at the start of treatment. Kari offers insights into risks, timing, and how to talk with your care team. Tekeima guides the discussion that covers the emotional impact of these decisions, differences between male and female patients, and the many ways to build a family.

    A special thank you to our host, Tekeima Townsend-Billups, senior staff chaplain in Spiritual Care at St. Jude; our expert Kari Bjornard, director of the Fertility Program and assistant member of the Oncology faculty at St. Jude; and St. Jude patient Keragan.

    This episode was recorded on June 26, 2026. Listen to the first part of this conversation on male fertility preservation decisions.

    Learn more about Keragan’s diagnosis of Hodgkin lymphoma on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about female fertility and mental well-being on Together by St. Jude™.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    40 分
  • Late Effects of Treatment

    Late Effects of Treatment
    2026/06/18
    When treatment ends, families might expect life to return to normal. But, while treatment may have an end date, the late effects of serious illness are less defined. This means life does not always go back to what it was before treatment started.

    In this episode, host Mark Brown and expert Jeanette Lavecchia talk with parent Carla Wyatt about the late effects of her son Brett’s treatment.

    Carla shares her family’s story, highlighting Brett’s joy and humor through the late effects that have changed their daily lives. Jeanette offers insights from her years of helping families navigate new diagnoses and life after treatment. Mark emphasizes the importance of community and finding joy and grace.

    A special thank you to our host, Mark Brown, director of Spiritual Care at St. Jude; our expert Jeanette Lavecchia, social work manager at St. Jude; and our parent guest, Carla Wyatt.

    This episode was recorded on February 5, 2026.

    Learn more about Brett’s diagnosis of acute lymphoblastic leukemia (ALL) on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about late effects of treatment and survivorship on Together by St. Jude™.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    34 分
  • Considering a Clinical Trial for a Child: A Caregiver's View

    Considering a Clinical Trial for a Child: A Caregiver's View
    2026/05/21
    When a child is facing a serious illness, being asked to consider a clinical trial can feel overwhelming. This episode of Caregivers SHARE continues our 2-part series on clinical trials by focusing on the real questions, emotions, and decisions caregivers face.

    Carina Richardson shares her family’s experience enrolling her son in a clinical trial. Seth Karol, MD, shares insights from a doctor’s perspective, on how he would approach a clinical trial as a caregiver. Clay Culp, LCSW, guides the conversation with thoughtful questions and key points. Together, they talk about how clinical trials may differ from standard treatment, what the consent process looks like, and why clear, ongoing communication is essential.

    This episode explores:
    • How clinical trials can change over time and differ for each child
    • What worries caregivers often have and how care teams can help
    • How child life specialists and other support services can help families
    • Why asking questions and speaking up matters
    This episode offers reassurance, perspective, and empowerment for caregivers making decisions about their child’s care.

    A special thank you to Clay Culp, social work manager at St. Jude; Seth Karol, MD, associate faculty member at St. Jude who specializes in leukemia and lymphoma; and parent Carina Richardson.

    This episode was recorded on March 5, 2026.

    For more background, listen to the previous episode: “What Is a Clinical Trial?”
    Learn more about Carina’s son Nolan’s diagnosis of medulloblastoma on Together by St. Jude™ and St. Jude Care & Treatment.

    Learn more about clinical trials on Together by St. Jude™ and St. Jude Care & Treatment.

    The quote that Carina and Clay reference is, “The best laid schemes of mice and men go oft awry, and leave us nothing but grief and pain for promised joy,” written by poet Robert Burns in his poem “To a Mouse” in 1785.

    This discussion is meant to provide a general overview. Information may vary depending on your child’s diagnosis, age, health history, and the type of clinical trial. Always talk with your child’s care team for details specific to your child.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    50 分
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