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Caregivers SHARE, a St. Jude Podcast

Caregivers SHARE, a St. Jude Podcast

著者： St. Jude (SJCRH)
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 A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.2023 衛生・健康的な生活 身体的病い・疾患
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  • Episode 6: Glimpses of Light in the Darkness

    Episode 6: Glimpses of Light in the Darkness
    2025/12/18
    When a child is diagnosed with a serious illness, families are faced with emotions, daily changes, and the challenge of finding light in the midst of darkness. In this episode, subject matter expert Erica Sirrine talks with Shane and Ashley Timmons about their daughter Ophie’s journey with a brain tumor and the realities of caregiving through uncertainty.

    Shane and Ashley share what it was like to navigate the early days of diagnosis, the ongoing medical complexities, and the daily process of holding both grief and hope. They discuss how their family learned to recognize and celebrate small victories, the importance of community support, and the intentional steps they take to seek out moments of joy—even on the hardest days. Erica offers insights into coping with loss, balancing family and sibling needs, and finding light through connection and vulnerability.

    A special thank you to our host and expert, Erica Sirrine, director of Social Work at St. Jude, and to our guests, parents Shane and Ashley Timmons.

    This episode was recorded September 23, 2025.

    Learn more about Ophie’s diagnosis of anaplastic PFA ependymoma on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about Avastin®, feeding tubes, and radiation therapy on Together by St. Jude™.
    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    37 分
  • Episode 5: Emotional Wellbeing

    Episode 5: Emotional Wellbeing
    2025/11/20
    Emotional wellbeing involves being present, having courage, and focusing on what’s important—even in tough times. But emotional health may look different when a child has a serious illness, especially if emotional health needs were there before diagnosis.

    In this episode, Clay Culp and Kendra Parris talk with caregiver Patricia LeBlanc and her daughter Sophie about emotional health while Sophie was going through treatment. Sophie was diagnosed with Ewing sarcoma at age 12. Kendra talks about the importance of taking care of yourself before you can take care of your child. Patricia discusses how her vision for Sophie’s life had to shift and explains how they embraced times to play and have fun together. Sophie talks about how her confidence grew and how she learned to manage her anxiety. The group explores the importance of sharing your burdens and getting support.

    A special thank you to our host, Clay Culp, senior social worker at St. Jude; our expert Kendra Parris, associate member of the St. Jude faculty in Psychology and Biobehavioral Sciences; and Patricia and Sophie LeBlanc.

    This episode was recorded August 1, 2025.

    Learn more about Sophie’s diagnosis of Ewing sarcoma on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about Psychology and Mental Health Services and wound vac therapy on Together by St. Jude™.

    A halo brace (or halo vest), mentioned in this episode, is a brace used to keep the spine and neck from moving and protect them after surgery.

    If you’re feeling hopeless, contact the 988 Suicide & Crisis Lifeline by calling or texting 988, or chatting online for support. 

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    35 分
  • Episode 4: Fertility Preservation Decisions

    Episode 4: Fertility Preservation Decisions
    2025/10/16
    Some treatments for serious illness can affect a patient’s ability to have biological children later in life, but there are ways to protect fertility. When a child is seriously ill, fertility preservation is a tough but important topic to address.

    In this episode, Mark Brown and Kari Bjornard talk with Evan Moore about fertility preservation when he was going through treatment. An elite NCAA track and cross-country athlete, Evan was diagnosed with Hodgkin lymphoma in his early 20s. Evan discusses the honest conversations he had with his mom and fiancée about preserving fertility. Kari offers insights into the timing, steps to take, talking to your care team, and other options for having a family. The group talks about staying positive and being with the people you love.

    A special thank you to our host, Mark Brown, director of Spiritual Care Services at St. Jude; our expert Kari Bjornard, director of the Fertility Program and assistant member of the Oncology faculty at St. Jude; and patient Evan Moore.

    This episode was recorded August 7, 2025. Stay tuned for a forthcoming episode on female fertility preservation decisions.

    Learn more about Evan’s diagnosis of Hodgkin lymphoma on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about male fertility and female fertility on Together by St. Jude™.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    39 分
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