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Caregivers SHARE, a St. Jude Podcast

Caregivers SHARE, a St. Jude Podcast

著者: St. Jude (SJCRH)
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A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.2023 衛生・健康的な生活 身体的病い・疾患
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  • Episode 2: The Importance of Sleep
    2025/08/21
    Sleep can be hard for both the patient and family when a child is sick. Sleep problems are common in children with serious illnesses. Trouble sleeping could be caused by treatment, medicines, or the effects of illness. But getting sleep is very important for healing and recovery.

    In this episode, Erica Sirrine and Valerie Crabtree talk with parents Andy and Caitlin about how they managed to get sleep when their son Max (now age 5) was going through treatment for Langerhans cell histiocytosis (LCH). Andy and Caitlin explain how they reached a compromise on sleeping arrangements at home. Valerie emphasizes that there is no playbook to figuring out sleep for your family. The group talks about the pressure to do things perfectly, and the joy of a simple nighttime song. Listeners will hear expert advice on routine, screen time, using melatonin as sleep aid, and co-sleeping.

    A special thank you to our host, Erica Sirrine, director of social work at St. Jude; our expert Valerie Crabtree, vice president of Psychosocial Services at St. Jude and a pediatric psychologist who specializes in sleep; and parents Andy and Caitlin.

    This episode was recorded April 24, 2025.

    Learn more about Max’s diagnosis of Langerhans cell histiocytosis (LCH) on St. Jude Care & Treatment.

    Read about one patient’s sleep success story on the Together blog.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    35 分
  • Episode 1: What Resilience Means
    2025/07/17
    What does resilience mean when a child is sick? Clay Culp, Janet Sellers, and parent Sara Lohse talk about resilience, or the ability to bounce back, when a child has a serious illness. Sara says “resilient” is the last thing she felt as her family navigated her daughter Madi’s cancer diagnosis and treatment. She shares one of the hardest moments their family experienced. The group talks about how resilience can mean acceptance and taking the next step.

    A special thank you to our host Clay Culp, senior social worker at St. Jude; Janet Sellers, manager of the St. Jude Staff Resilience Center; and parent Sara Lohse.

    Learn more about Madi’s diagnosis of acute myeloid leukemia (AML) and emotional support and daily life on Together by St. Jude™.

    This episode was recorded April 24, 2025.The book that Sara references in the episode is It’s Not Supposed to Be This Way by Lysa TerKeurst.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    41 分
  • Season 3 Trailer
    2025/07/10
    We're happy to present season 3 of Caregivers SHARE, a St. Jude podcast. Hear from families and health care providers as they share personal stories and offer support to those caring for a child with a serious illness.

    At St. Jude, we understand the challenges that families face during this difficult time, and we are committed to providing resources to help. Each episode of the podcast focuses on S.H.A.R.E—Supporting, Honoring, Advising, Reflecting, and Encouraging caregivers.

    The first episode of Season 3 will drop on July 17, 2025.
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    1 分
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