『Caregivers SHARE, a St. Jude Podcast』のカバーアート

Caregivers SHARE, a St. Jude Podcast

Caregivers SHARE, a St. Jude Podcast

著者： St. Jude (SJCRH)
無料で聴く

このコンテンツについて

 A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.2023 衛生・健康的な生活 身体的病い・疾患
エピソード
  • Episode 4: Fertility Preservation Decisions

    Episode 4: Fertility Preservation Decisions
    2025/10/16
    Some treatments for serious illness can affect a patient’s ability to have biological children later in life, but there are ways to protect fertility. When a child is seriously ill, fertility preservation is a tough but important topic to address.

    In this episode, Mark Brown and Kari Bjornard talk with Evan Moore about fertility preservation when he was going through treatment. An elite NCAA track and cross-country athlete, Evan was diagnosed with Hodgkin lymphoma in his early 20s. Evan discusses the honest conversations he had with his mom and fiancée about preserving fertility. Kari offers insights into the timing, steps to take, talking to your care team, and other options for having a family. The group talks about staying positive and being with the people you love.

    A special thank you to our host, Mark Brown, director of Spiritual Care Services at St. Jude; our expert Kari Bjornard, director of the Fertility Program and assistant member of the Oncology faculty at St. Jude; and patient Evan Moore.

    This episode was recorded August 7, 2025. Stay tuned for a forthcoming episode on female fertility preservation decisions.

    Learn more about Evan’s diagnosis of Hodgkin lymphoma on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about male fertility and female fertility on Together by St. Jude™.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
    続きを読む 一部表示
    39 分
  • Episode 3: Understanding Sickle Cell Disease

    Episode 3: Understanding Sickle Cell Disease
    2025/09/18
    Sickle cell disease is a blood disorder that affects patients physically, emotionally, and socially. Even though sickle cell research and treatment have improved over the last several years, many are still learning about how this condition impacts the body and daily life.

    In this episode, parents Audrey Davis and Quenton Mullins talk with Tekeima Townsend-Billups and Jerlym Porter about going through sickle cell disease with their daughters Courtney and Nia. They discuss the invisible and unpredictable nature of the disease, dealing with pain crises, the importance of therapy, and advocating for their children.

    A special thank you our host, Tekeima Townsend-Billups, senior staff chaplain at St. Jude; our expert, Jerlym Porter, associate member of the St. Jude faculty in Psychology and Biobehavioral Sciences; and parents Audrey Davis and Quenton Mullins.

    Learn more about Courtney and Nia’s diagnosis of sickle cell disease and the transition to adult health care on Together by St. Jude™.

    The statistics that Quenton mentions on sickle cell disease in the U.S. can be found on the CDC’s website.

    Discover more insights into Nia’s journey on the Together blog.

    This episode was recorded May 15, 2025.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
    続きを読む 一部表示
    45 分
  • Episode 2: The Importance of Sleep

    Episode 2: The Importance of Sleep
    2025/08/21
    Sleep can be hard for both the patient and family when a child is sick. Sleep problems are common in children with serious illnesses. Trouble sleeping could be caused by treatment, medicines, or the effects of illness. But getting sleep is very important for healing and recovery.

    In this episode, Erica Sirrine and Valerie Crabtree talk with parents Andy and Caitlin about how they managed to get sleep when their son Max (now age 5) was going through treatment for Langerhans cell histiocytosis (LCH). Andy and Caitlin explain how they reached a compromise on sleeping arrangements at home. Valerie emphasizes that there is no playbook to figuring out sleep for your family. The group talks about the pressure to do things perfectly, and the joy of a simple nighttime song. Listeners will hear expert advice on routine, screen time, using melatonin as sleep aid, and co-sleeping.

    A special thank you to our host, Erica Sirrine, director of social work at St. Jude; our expert Valerie Crabtree, vice president of Psychosocial Services at St. Jude and a pediatric psychologist who specializes in sleep; and parents Andy and Caitlin.

    This episode was recorded April 24, 2025.

    Learn more about Max’s diagnosis of Langerhans cell histiocytosis (LCH) on St. Jude Care & Treatment.

    Read about one patient’s sleep success story on the Together blog.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
    続きを読む 一部表示
    35 分
まだレビューはありません