エピソード

  • CP Conversations (Episode 20) Dr. Christine Astarita
    2021/08/10

    In this episode of CP Conversations, I talk to Dr. Christine Astarita, a physical therapist and the founder of Breakthrough Intensive PT: Long Island’s intensive therapy center which helps people with neurological diagnoses while focusing on the whole family.  Christine is also the author of “Breaking Through Special Needs” which was ranked #1 on Amazon, and the podcast host for “Breaking Through Special Needs”.  She’ll also be a presenter at the upcoming 6th Annual Virtual Cerebral Palsy Conference on October 1st and 2nd (registration is FREE). www.cerebralpalsyconference.org

    We discuss what inspired her to become a pediatric therapist, how a well-rounded, community-based approach to the entire family sets her practice apart, why she’s passionate about providing resources, support to her patients, and her upcoming 85-mile ultra run — while wheeling some of her patients — from the Montaulk Point Lighthouse to her office, which will raise money for Angela’s House, a local non-profit.  Plus, she shares her #1 tip for how to choose the right therapist for your child. Follow Breakthrough Intensive PT on Facebook at https://www.facebook.com/breakthroughintensivept and on Instagram @breakthroughintensivept.  Visit their website at: https://www.breakthroughptli.com/.

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    24 分
  • CP Conversations (Episode 19) Jacquie Robison
    2021/07/28

    In this episode of CP Conversations, I talk to Jacquie Robison, the founder of WAWOS, which stands for "We're All Working On Something.” It’s a multi-national nonprofit with a mission to celebrate children with neuromuscular delays and physical differences.

    We discuss getting a cerebral palsy diagnosis, how a trip to the park with her daughter, Sofia, inspired her to create walker capes for children, and the birth, meaning behind WAWOS. Since July is Disability Pride Month, Jacquie shares how she encourages Sofia to be proud of all of who she is, why cerebral palsy is the least interesting thing about her.

    Follow WAWOS on Facebook + Instagram @wawosorg. Visit their website at: https://www.wawos.org.

    Learn more about our Cerebral Palsy Conference on October 1st and 2nd at: www.cerebralpalsyconference.org.

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    27 分
  • CP Conversations (Episode 18) Caroline Naif
    2021/07/24

    In this episode of CP Conversations, I talk to Caroline Naif from Briella & Me, a mom on a mission to raise awareness for cerebral palsy by sharing her daughter’s (Briella) journey.

    We discuss the challenges of navigating a cerebral palsy diagnosis, how SDR (selective dorsal rhizotomy) surgery changed Briella’s life, what motivated her to become an advocate on social media and why being connected to other warrior families is so important. Since July is Disability Pride Month, Caroline also talked about how she instills confidence in young Briella. Plus, the soon-to-be 7-year-old makes a brief appearance! 

    Follow Briella & Me on Instagram (and across all social media) @briellaandme. 

    Learn more about our Cerebral Palsy Conference on October 1st and 2nd at: www.cerebralpalsyconference.org.

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    25 分
  • CP Conversations (Episode 17) Zahra Brown
    2021/06/29

    In this episode of CP Conversations, I talk to Zahra Brown, a Black lesbian with mild cerebral palsy who is hard of hearing. We discuss what caused her hearing loss as a baby, moving from Jamaica to Canada, and why her family is her greatest advocate. Since June is Pride Month, Zahra also talked about the importance of coming out, liberation, and self-love. She gives sage advice for anyone who is struggling with their sexual identity. Plus, we learn one simple thing LGBTQ allies can do to help. Follow Zahra on Instagram @sweetlikez. Learn more about our Cerebral Palsy Conference on October 1st and 2nd at: www.cerebralpalsyconference.org.

     

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    22 分
  • CP Conversations (Episode 16) Jeris Getter: Football Coach
    2021/06/10

    In this episode of CP Conversations, I talk to Jeris Getter, the first coach with cerebral palsy in the University of Dayton’s history.

    We discuss what it was like growing up on a farm, the difficulty of making friends in school, his passion for football, and how he made his dream of coaching a reality. Since June is Post Traumatic Stress Disorder (PTSD) Awareness Month, Jeris also talked about his symptoms, how asking for help drastically changed the quality of his life. Plus, we learn what’s coming up on the field, why he’s in talks with ESPN!

    Follow Jerris on Instagram + Twitter @coachgetter. Read more about his journey in the Dayton Daily News at https://www.daytondailynews.com/sports/archdeacon-assistant-coach-flyers-lean-each-other/dVS1mUiDObgFxGTysvyRaK/ 

    Learn more about our Cerebral Palsy Conference on October 1st and 2nd at: www.cerebralpalsyconference.org.

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    26 分
  • CP Conversations (Episode 15) Mary Fashik: Founder of Upgrade Accessibility
    2021/05/20

    May 20, 2021, is the tenth Global Accessibility Awareness Day (GAAD). The purpose is to get everyone talking, thinking, and learning about digital access and inclusion, and the more than One Billion people with disabilities and/or impairments.

    In this episode of CP Conversations, I talk to Mary Fashik, the founder of Upgrade Accessibility, a movement designed to challenge accessibility standards while amplifying voices in the disabled and chronically ill communities.

    We discuss the ways inaccessibility affects her life as an adult with cerebral palsy, how Upgrade Accessibility started, and simple steps companies (and people in general) can take to make their content more accessible. Since May is Mental Health Awareness Month, Mary also talked about seeking help for depression, the lack of medical accessibility, and how the pandemic has affected her mental health.

    Follow Upgrade Accessibility on Facebook at https://www.facebook.com/upgradeaccessibility Follow Upgrade Accessibility on Instagram @upgradeaccessibility. 

    For more information about Global Accessibility Awareness Day (GAAD), visit their website at https://globalaccessibilityawarenessday.org. 

    Learn more about our Cerebral Palsy Conference on October 1st and 2nd at: www.cerebralpalsyconference.org.

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    25 分
  • CP Conversations (Episode 14) Steph Degodny: Founder of Max & Me
    2021/05/13

    May is Pediatric Stroke Awareness Month. In this episode of CP Conversations, I talk to Steph Degodny, a warrior Mama to Max (a pediatric stroke survivor) and the Founder of Max & Me, a company that creates  funky socks made to be worn with AFOs (ankle-foot orthosis) — inspired by Max but made for everyone. She’s also a proud fighter in the Inclusion Revolution.

    We discuss the story surrounding Max’s birth, how hemiplegic cerebral palsy affects him, and the impetus behind Max and Me. Steph also talked about the Inclusion Revolution, her partnership with WAWOS (We’re All Working on Something), and why she prefers the term Extra Needs instead of Special Needs. Plus, we get a peek at the beautiful socks she creates, and the scoop on when Max & Me will be featured in JCPenney’s new adaptive department. 

    Follow Max & Me on Facebook at https://www.facebook.com/maxandmegear. Follow Max & Me on Instagram @maxandmegear. Visit Max & Me’s website at https://maxandmegear.com.  Learn more about our Cerebral Palsy Conference on October 1st and 2nd at: www.cerebralpalsyconference.org. 

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    33 分
  • CP Conversations (Episode 13) David Figueroa
    2021/05/07

    It’s the first week of May which means it’s Teacher Appreciation Week! In this episode of CP Conversations, I talk to David Figueroa, a former multisport athlete and a three-time state champion cyclist, who is currently a middle school teacher in Florida.

    We discuss life with spastic hemiplegia, a doctor’s prediction that he would never read, write or talk, and how losing his mom at a young age willed him to succeed. David also shares the challenges of living in his native Puerto Rico versus the United States, the importance of letting your actions, not your disability define who you are, and how the decision to move his body changed his life.

    Check out David’s YouTube channel at https://www.youtube.com/channel/UCbBwDx9ba9wHPfnNCobD9XA. Follow him on Instagram @davidscpfitness.

    Learn more about our Cerebral Palsy Conference on October 1st and 2nd at www.cerebralpalsyconference.org.

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    35 分