In this week’s episode, Brain & Life Podcast hosts Dr. Daniel Correa and Dr. Katy Peters discuss some of their favorite articles in the most recent edition of Brain & Life Magazine. They discuss how families are leading the charge in rare disease advocacy, how people living with neurologic conditions can be prepared for natural disasters, and what brain fog really is. If you would like to read these articles and more, be sure to subscribe to Brain & Life Magazine or read the issue online!

Brain & Life Articles Mentioned

How a Brain Injury Survivor is Offering Others Help and Hope

How Families Are Leading the Charge in Rare Disease Advocacy

Natural Disasters Can Be More Dangerous for People with Neurological Conditions—Here’s How You Can Prepare

What Is Brain Fog?

Other Brain & Life Podcast Episodes on These Topics

Actor Cameron Boyce’s Legacy and Raising Awareness About SUDEP

Raising Awareness for a Rare Cancer with Love4Lucas President Hide Harashima

Advocacy and Assistive Technology with Former Representative Jennifer Wexton

Actress Yvette Nicole Brown Discusses the Caregiving Journey

We Are Brave Together with Jessica Patay

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at BLpodcast@brainandlife.org

Social Media:

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by dedicated public servant and former U.S. Representative for Virginia's 10th congressional district Jennifer Wexton. She shares about her journey with progressive supranuclear palsy (PSP) and what she has learned from the PSP community. She also discusses the importance of advocacy and the use of assistive technology, including the AI-generated voice she uses during this episode. Dr. Correa is then joined by Dr. Janis Miyasaki, a movement disorders specialist who practices at the University of Alberta in Canada where she is the head of the department of clinical neuroscience and co-directs the Neuropalliative Care Clinic. Dr. Miyasaki explains PSP and discusses what the care experience may look like for someone living with PSP and their loved ones as they search for comfort and peace.

Interested in getting involved with advocacy? Learn more here: https://www.brainandlife.org/get-involved/advocate/

Additional Resources

Former Representative Jennifer Wexton Breaks Barriers with AI-Generated Voice Amid PSP Battle

The Research Pipeline for Progressive Supranuclear Palsy

CurePSP

Other Brain & Life Podcast Episodes on Similar Topics

Family Stories: Diagnosing a Neurodegenerative Condition

The Future of Caregiving with Kat McGowan

Still Standing with Staff Sergeant John Kriesel

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Jennifer Wexton @repwexton; Dr. Janis Miyasaki @ualberta

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by songwriter, storyteller, and multi-instrumentalist Greta Morgan. Greta shares her journey being diagnosed with spasmodic dysphonia and how it has changed every aspect of her life, leading her to write her memoir, The Lost Voice. Dr. Correa is then joined by Dr. Brent Richardson, board certified Otolaryngologist (Ear, Nose, and Throat physician) with a specialty in Laryngology at The Bastian Voice Institute. Dr. Richardson explains what spasmodic dysphonia is, how it’s diagnosed and treated, and different factors that may affect each person’s experience with the condition.

This episode features music from throughout Greta Morgan’s musical career. To hear more, visit https://www.gretamorganmusic.com/.

Additional Resources

The Lost Voice: A Memoir

Remaining Positive After a Spasmodic Dysphonia Diagnosis

Dysphonia International

Other Brain & Life Podcast Episodes on Similar Topics

Billy McLaughlin on Life as a Musician with Focal Dystonia

Rogers Hartmann on Beating Dystonia

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Greta Morgan @gretamorgan; Dr. Brent Richardson @bastianvoiceinstitute

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD