『Benjamin diagnosed with MPS 1 - The impossible turned into possible!』のカバーアート

Benjamin diagnosed with MPS 1 - The impossible turned into possible!

Benjamin diagnosed with MPS 1 - The impossible turned into possible!

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今ならプレミアムプランが3カ月 月額99円

2026年5月12日まで。4か月目以降は月額1,500円で自動更新します。

概要

This episode tells the story of one family’s struggle ( my own story) with a devastating diagnosis when their two-year-old son Benjamin was found to have a progressive genetic disorder called Hurler Syndrome (MPS1). With doctors warning that Benjamin may only live for five years, his parents refused to give in and instead used this life-changing moment to take charge of their own future. This remarkable story is an inspiring tale of hope and courage – showing how even in the face of an impossible situation, nothing is ever truly out of reach.
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