In this episode, Sarita is joined by Jenifer Waldrop, Executive Director of the Rare Disease Diversity Coalition (RDDC), to discuss the Inequities in the Rare Disease Community Report completed in partnership with the National Organization for Rare Disorders (NORD).

This research involved over 2,800 participants and sheds light on the barriers faced by underrepresented patients with rare diseases.

Tune in as we delve into this groundbreaking national survey, while offering critical insights into healthcare access challenges.

Learn more about RDDC and NORD:

RDDC at rarediseasediversity.org

NORD at rarediseases.org

In this episode of the Being Rare Podcast, Sarita sits down with James Griffin and Genesis Jones, patient advocates and authors. We're talking about navigating life with sickle cell, healthcare bias, stigma, and more!

The books mentioned in this episode can be found on Amazon. Direct links are below.

Breaking Silence: Living with Sickle Cell Anemia by James Griffin III https://a.co/d/3znpc3s

Rebirth: A Sickle Cell Warrior's Crossover (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/3lVQL7Z

Resilient: Reflections of a Sickle Cell Journey (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/73XsFla

In this episode of the Being Rare Podcast, Sarita sits down with NASM certified trainer and professional bodybuilder, Coach Jeff Benton to talk about the value of prioritizing self care into your daily routine.

Interested in personal training or coaching? In-person and virtual options available. Personal instruction. Nutrition monitoring. One-on-one or group. Bodybuilding contest prep and coaching also available.

Contact Coach Jeff to learn more:

Email: jzb0149@auburn.edu

Instagram: @the_eclipse615 Watch: https://buff.ly/4hMTIix