Autoimmune dichotomy: holding grief and joy at the same time
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Autoimmune dichotomy: holding grief and joy at the same time
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In this heartfelt episode, Rachel sits down with Julia Edelman to discuss her ten-year journey with uveitis, an autoimmune disorder affecting the retina. They explore the roller coaster of emotions Julia has experienced through the medical challenges and numerous surgeries. She expresses difficult emotions, such as feeling like a burden to her caregivers during her procedures, but also shares uplifting experiences like finding creative outlets through her newsletter, dancing, and building online community spaces to support others facing similar health challenges.
😊 Julia's Eyewitness Newsletter: https://juliaedelman.substack.com/
🐙Julia's resource recommendations:
- Between Two Kingdoms: A Memoir of a Life Interrupted by Suleika Jaouad
- Isolation Journals, Suleika Jaouad's Substack
🔥 Rachel's Substack, Inner Workings: https://raekatz.substack.com/
✨ Ladies Illness Library written interviews: https://raekatz.substack.com/s/ladies-illness-library
🎶Music "Upbeat Defiant Challenge Funky Groove" by Uroboros Music, licensed through Audio Jungle