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  • Moments That Matter: Poetry and Presence in Alzheimer’s Care with Marjorie Maddox
    2025/07/01

    Poet Marjorie Maddox and acquisitions editor Sheila Luna join host Marianne Sciucco to discuss the healing power of poetry, the realities of long-distance caregiving, and finding hope through the complexities of Alzheimer’s and dementia.

    Maddox’s, recent collection, Seeing Things, explores the tangled emotional landscape of dementia caregiving. The discussion examines the ways poetry can illuminate and comfort those touched by memory loss. Marjorie reads several of the poems, a gift to all .

    The conversation moves beyond the personal to the universal. Marjorie shares that many poems in Seeing Things draw on her caregiving experiences for her mother, who lived with dementia, as well as her supportive role with her father-in-law—both journeys complicated by long distance and pandemic separation. As Marjorie admits, “You do feel so isolated when you’re going through it,” but the overlap in experience and shared vulnerabilities make poetry a communal space for catharsis. Poems in the collection touch not just on family memories but also larger societal losses—mass shootings and cave rescues—drawing lines between personal and collective grieving.

    Marianne and Marjorie bring up a topic rarely discussed: the fractured roles in family caregiving, particularly for long-distance caregivers. Marjorie, based in Pennsylvania, supported her mother by daily phone calls and periodic visits, while her sister managed in-person care in Phoenix. Meanwhile, her brother handled the finances. These divisions, while pragmatic, often go unrecognized, and both the emotional and practical burdens can be immense.

    The episode closes on the essential role of poetry—and storytelling—in chronicling caregiving journeys and connecting with others who walk a similar path. Whether it’s through a poem, a book, advocacy, or acts of compassionate service, these stories, hard-won and deeply personal, help others feel less alone. As Marjorie shares: “Being there for those little moments…even when you don’t feel like you’re doing anything, just holding someone’s hand… still does a lot.” And, perhaps, reading or writing poetry about those moments offers a light, a “slice of joy,” for a world too often shaped by loss.

    After the Podcast

    Purchase Seeing Things

    Learn about the Moderators

    Marianne Sciucco

    Sheila Luna

    About the Podcast

    AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

    We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.

    To sustain our efforts please donate here.

    Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

    Thanks for listening.

    We are a Whole Care Network Featured Podcast

    Proud to be on The Health Podcast Network

    Find us on The World Podcast Network and babyboomer.org

    Want to be on the podcast? Here’s what you need to know.

    We've got merch! Shop our Store

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    1 時間 4 分
  • Living Well with Early-Onset Alzheimer's: Peter's 10-Year Journey
    2025/06/17
    This podcast brought together two remarkable friends—Peter Berry and Deb Bunt—for a conversation that was as inspiring as it was deeply honest. Hosted by Marianne Sciucco and Christy Byrne Yates, the discussion explored not only the personal journeys and books of Peter and Deb, but also the profound insights they’ve gained into living well with dementia. Peter's journey began with a diagnosis of early-onset Alzheimer’s at the age of 50. As a successful business owner, he was shocked—and initially devastated—by the news. He shares openly about the dark period following his diagnosis, describing it as “a year of hell,” marked by depression and even suicide attempts. What’s remarkable, though, is how Peter transformed that despair into a renewed sense of purpose. Inspired by both his own experience and his father’s long journey with Alzheimer’s, Peter resolved to become a source of hope and understanding for others facing similar challenges. Enter Deb Bunt, Peter’s cycling buddy-turned-co-author and close friend. Their relationship is a beautiful demonstration of how support doesn’t just flow one way. As Deb and Peter describe it, they each bring unique strengths to the friendship: Deb provides companionship and boundless camaraderie, while Peter offers technical know-how and navigational skills. Together, they reinforce the idea that living well with dementia is as much about mutual support and meaning as it is about medical care. This mutuality spills into their advocacy efforts—travelling throughout the UK, speaking at events, and writing books together. Their creative journey produced two books so far: Slow Puncture, a memoir of Peter’s life post-diagnosis, and Walk With Me: Musings Through the Dementia Fog, a collection of Peter’s raw and poetic reflections. Deb explained how Peter’s poetic descriptions became the muse for her own long-harbored ambitions to write, and how collecting Peter’s texts and turning them into a book gave both of them a sense of validation and purpose. These works don’t just recount Peter’s experiences; they offer a window into his emotional landscape—with metaphors that make the inexplicable aspects of dementia relatable. For Peter, cycling is like “a balloon that takes me high into the sky”—a momentary escape from the limitations of his diagnosis. Read their books: Slow PunctureWalk With Me Watch “The Restaurant That Makes Mistakes” About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    1 時間 9 分
  • The Caregiver’s Spin Cycle: Lessons, Laughter, and Life with Alfredo Botello
    2025/06/03
    In this engaging episode, hosts Marianne Sciucco and Christy Byrne Yates are joined by fiction writer and caregiver,Alfredo Botello, and AlzAuthors’ acquisitions editor Ruth Stevens. Dive into a heartfelt and surprisingly humorous conversation as Alfredo discusses his novel, Spin Cycle, which explores the journey of a son caring for his mother with dementia. Alfredo, who transitioned from architect to screenwriter to novelist, and also runs a California dive bar, shares the inspiration behind his original story and opens up about balancing humor and heartbreak on the Alzheimer’s caregiving path. Key Highlights: Alfredo’s novel takes a rare spin, centering on a “pop-up school” for caregivers—the support group you wish you’d had—where ten diverse participants deal with overwhelming responsibilities, guilt, humor, and hope.Alfredo talks openly about his personal dementia journey, caregiving for his mother, facing challenging emotions, and the importance of self-forgiveness and embracing compassion, even in tough moments.From absentee siblings to laugh-or-cry moments, hear how Alfredo’s characters mirror real life and help break the silence around caregiving.Discover how fiction can be as supportive and insightful as caregiver guides, helping readers feel less alone and more validated in their struggles.Learn about upcoming AlzAuthors initiatives, including book giveaways and a first-of-its-kind Alzheimer’s and dementia film festival—unique ways to connect and educate through storytelling. Whether you’re a caregiver, a family member, or simply want to better understand Alzheimer’s and dementia, this episode offers vital insights, practical encouragement, and genuine laughter. Alfredo’s honest storytelling and the hosts’ empathetic questions highlight the challenges and unexpected gifts found on the dementia journey. Find Out More: Get Spin Cycle by Alfredo BotelloExplore his other works at https://alfredobotello.com/Join the AlzAuthors community and check out giveaways, event sign-ups, and caregiving resources at https://alzauthors.com/Read Alfredo’s exclusive essay for AlzAuthors https://alzauthors.com/blog Subscribe and Share: If you enjoyed this episode subscribe to the AlzAuthors podcast and share this story with someone who cares. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store
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    1 時間 7 分
  • Exploring Family, Love, and Alzheimer’s Through Fiction with Author Marita Golden
    2025/05/20
    Welcome to a powerful episode of the AlzAuthors Podcast featuring acclaimed author Marita Golden and her novel, The Wide Circumference of Love, as part of the Aging & Amazing Book Club series. This engaging discussion dives into the storytelling craft, the nuances of family caregiving, and the realities of Alzheimer’s and dementia, especially in African American communities. An award-winning author of 22 books, Marita Golden shares her journey as a writer, from being a story-loving child in Washington, D.C., to producing literary works that explore social issues and healing. She shares how she came to write a story centered on a caregiver after immersing herself in caregiving spaces, meticulous research, and witnessing a friend’s torturous battle caring for her husband. Ms. Golden shares insights into the connection between writing and healing, and how journaling and other forms of writing can be vital mental health tools that promote resilience. She also speaks to the higher rates of Alzheimer’s and other dementias in the African American community, citing the lack of representation in clinical trials as one contributing factor, and speaks to why awareness and advocacy are more important now than ever. For readers and writers, Ms. Golden shares insight into the craft of writing, her writing routine, and her creative evolution. Key Takeaways: Storytelling unites families and communities, easing the isolation of caregiving and dementia.Fictional works like The Wide Circumference of Love, along with memoirs and how-to guides, are crucial for raising awareness of Alzheimer’s and dementia.Journaling and creative writing document the caregiving journey and provide healing and hope for both writers and readers.The urgent need for advocacy and equity in dementia care for marginalized communities. About Marita Golden: Marita Golden is President Emeritus and co-founder of the Hurston/Wright Foundation. She is also an educator and author of fiction and nonfiction exploring Black life, identity, and resilience. Her recent memoir, How to Become a Black Writer, is available now. Find out more about Marita Golden on her website. Read Marita’s AlzAuthors Blog Follow Marita Golden: Facebook Instagram LinkedIn Buy Marita’s books: The Wide Circumference of LoveUs Against Alzheimer’s Anthology About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    59 分
  • Supporting Children Through a Grandparent’s Alzheimer’s Journey with Carol Steinberg
    2025/05/06
    In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children’s book, Come Grandpa Meow, Let’s Fly, adds a much-needed resource for families navigating the challenges of Alzheimer’s and dementia. A Personal Story Sparked by Loss Carol’s journey began more than 25 years ago, during her own father’s struggle with Alzheimer’s. She originally wrote the book as part of her grieving process, but it wasn’t until she’d spent years working at both local and national Alzheimer’s organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old. Empowering Children & Families One thing that sets Carol’s children’s book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.” For Adults, Too Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection. Recommended by the Experts Don’t just take our word for it—Come Grandpa Meow, Let’s Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power. Whether you’re a caregiver, educator, parent, or grandparent, Carol’s book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey. After the Podcast Purchase “Come Grandpa Meow, Let's Fly" Read Carol's AlzAuthors blog post Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    59 分
  • When Dementia Tests the Bonds of Marriage with Debra Tann, Ed.D
    2025/04/15
    Do you want to gain a deeper understanding of the impact of dementia on marriages? If you’re seeking practical guidance and emotional resilience in this area, discover solutions to help you navigate this challenging journey in this replay of an enlightening Books & Chit Chat discussion with Debra Tann, Ed.D. In this episode, you will be able to: Understand the ins and outs of dementia care to enhance your caregiving skills and provide better support.Gain insight into navigating the journey of dementia diagnosis to feel more empowered and informed.Explore the impact of dementia on marriages to build resilience and find ways to strengthen relationships.Implement effective care strategies for frontotemporal dementia, enhancing the quality of life for your loved one.Learn how to address racial disparities in dementia care to create a more inclusive and equitable support system. Our special guest is Debra Tann, Ed.D, the CEO of Reminiscent, who brings a vibrant blend of experience to the field of dementia education. Her journey into this space began with a career in education and a keen eye for behavioral changes in her husband, ultimately leading to a diagnosis of frontotemporal dementia (FTD). As a certified dementia educator and author of “The Race of Dementia,” Debra’s expertise offers caregivers practical guidance and emotional resilience, drawing from her own lived experiences. Her compassionate approach and dedication to enhancing caregiving skills make her a valuable resource for those navigating the complexities of dementia care. Books & Chit Chat is a partnership with Aging and Amazing to bring authors and readers together to share stories and discuss the multiple facets of dementia care. After the Podcast Purchase “The Race of Dementia” Read Debra’s AlzAuthors blog post Visit Debra’s website: Debra On Dementia Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    59 分
  • A Son's Journey: Love, Humor, and Learning to Let Go of Logic with David Bredbenner
    2025/04/01
    David Bredbenner, author of "Going Home: A Journey with Dementia," shares his profound experience caring for his mother through her journey with dementia. Before dementia, Betty Jane was a dynamo - a retired nurse turned successful artist who ran marathons well into her late 70s. The decline began subtly after a fall, but it was the passing of David's sister Terry that marked the stark transition into full-blown dementia One of David's most powerful lessons was learning to "throw logic right out the window." Traditional reasoning and reality-checking only led to frustration. Instead, he discovered the transformative power of meeting his mother where she was, using humor and creative redirection rather than confrontation. Despite working in technology and traveling frequently, David and his sister made the conscious choice to keep their mother at home. While acknowledging it wasn't always possible for everyone, he describes it as both "pure hell" at times and "an absolute gift." The journey taught him profound patience and the importance of focusing on emotional connection rather than factual accuracy. Even in the most challenging moments - like when his mother became combative or refused care - David found that humor and gentle persistence could break through where logic failed. Perhaps most touching was David's reflection on love transcending understanding: "She knew she was loved...and she didn't have to know why." This simple but profound observation captures the essence of caring for someone with dementia - that connection and comfort matter more than comprehension. In this episode, you will: · Discover effective strategies for caring for a parent with dementia. · Understand the emotional journey of being a dementia caregiver and how to navigate it. · Explore the impact of Alzheimer's on family dynamics and relationships. · Uncover the process of writing a book about personal dementia experiences. · Learn practical and valuable strategies for managing dementia symptoms. After the Podcast Read David's AlzAuthors blog post Purchase “Going Home: A Journey with Dementia” Learn about the World Walks Against Dementia Learn about Norrms McNamara and Global Purple Angel Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    1 時間 29 分
  • Lewy Body Dementia: A Complex Illness Unravels Deep Family Bonds with Susan Landeis
    2025/03/18
    Do you want to experience the healing power of family relationships and find hope and peace amidst the challenges of caregiving? In this episode we discuss a solution. Our special guest is Susan Landeis, author of "In Search of Rainbows: A Daughter’s Story of Loss, Hope and Redemption." Susan is an inspiring voice in the Alzheimer's and dementia caregiving community. Her memoir delves into her journey of caring for her mother with Lewy Body Dementia, while navigating a lifelong, complex, and estranged relationship. Susan's candid storytelling and experiences offer invaluable insights into the challenges of caregiving and the transformative power of forgiveness and healing within family dynamics. As a member of the AlzAuthors management team, Susan brings a wealth of knowledge and compassion to her work, providing support and understanding to those facing similar struggles. Her personal journey and dedication to raising awareness of dementia caregiving make her a compelling and relatable guest for today's episode. Estrangement within families can present additional challenges when taking on the role of caregiver. Navigating this complex dynamic requires open communication, patience, and a willingness to address underlying issues. Caregivers like Susan have found that caregiving can offer a pathway to reconciliation, understanding, and forgiveness, ultimately bridging the gap created by estrangement. In this episode, you will: · Discover effective coping strategies for Lewy Body Dementia, bringing peace of mind to both you and your loved one. · Learn how caregiving can become a catalyst for healing family relationships, fostering understanding and connection. · Find ways to navigate the challenges of estrangement while providing loving care for your family member. · Explore the powerful process of writing a memoir on dementia caregiving, capturing and preserving precious memories. · Gain valuable insights into managing senior health and well-being, empowering you to provide the best care possible. After the Podcast Buy “In Search of Rainbows” Read Susan’s AlzAuthors Post Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors. Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    1 時間 2 分