『About IBD』のカバーアート

About IBD

About IBD

著者： Amber J Tresca
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Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.©2025 Mal and Tal Enterprises; ©2025 Cooney Studio 衛生・健康的な生活 身体的病い・疾患
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  • Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin

    Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin
    2026/06/23
    Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn's disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three major surgeries, adjusting his career path away from law enforcement, and learning to manage stress as part of living with a chronic illness. He also discusses developing apps, including Brown Note, a free, anonymous peer-support app for people with digestive diseases. Brown Note was inspired by his own feelings of isolation while preparing for his third surgery and is available on Apple, Android, and the web. Transcript and more at: https://bit.ly/AIBD204 What you'll learn:

 Personal journey with Crohn's disease, including challenges in high school and college and the impact surgery has on personal and professional life.What goes into developing apps to support individuals with digestive diseases. What goes into creating a bathroom finder app such as "Flusher."Explanation of Brown Note, an anonymous peer support app for people with IBD.Importance of community and support for those with chronic illnesses.Coping strategies for managing stress and emotional challenges related to illness, such as reading and music. Key Chapters & Timestamps: [00:00:05] — Introduction to Andrew Giffin[00:01:49] — Early Symptoms and Diagnosis Journey[00:03:53] — The Challenge of University Life[00:07:09] — First Surgery and Recovery[00:09:30] — A Ruptured Appendix Emergency[00:12:28] — Changing Career Aspirations[00:15:53] — Coping with Life Changes[00:18:32] — Developing the "Flusher" App[00:21:14] — Lessons Learned from "Flusher"[00:24:54] — The Creation of "Brown Note"[00:27:50] — The Goal of the "Brown Note" App[00:30:12] — Andrew's Current Reading Obsession[00:33:59] — How to Find "Brown Note" Find Andrew Giffen at: LinkedIn: https://www.linkedin.com/in/giffen/ Find Brown Note at: Web: https://www.brownnote.app/Apple Store: https://apps.apple.com/app/id6759183219Google Play: https://play.google.com/store/apps/details?id=com.brownnote.app Resources discussed on this episode: Melsheimer R, Geldhof A, Apaolaza I, Schaible T. Remicade® (infliximab): 20 years of contributions to science and medicine. Biologics. 2019;13:139-178. doi:10.2147/BTT.S207246 https://pmc.ncbi.nlm.nih.gov/articles/PMC6679695/Anal Fissure vs. Fistula: What Are the Differences First Signs of Appendicitis and Symptoms You Shouldn't Ignore IBD in College or Grad School: Coping With Stress, Flares, and Feeling Left BehindGot2Go — New York City Bathroom Finder We Can't Wait: Restroom Finder App — Crohn's and Colitis FoundationGoHere® Washroom Access — Crohn's and Colitis Canada Pop culture references: The Smiths: https://www.amazon.com/s?k=the+smiths&rh=p_lbr_music_artists_browse-bin%3AThe%2BSmithsThe Wheel Of Time Series: https://www.amazon.com/Wheel-Time-Book-Set-Crossroads/dp/B00132BG7U/Frank Herbert's Dune Saga: https://www.amazon.com/Frank-Herberts-Dune-6-Book-Boxed/dp/0593201884/ Find Amber J Tresca at: AboutIBD.com: About IBDVerywell: Verywell HealthFacebook: @aboutIBDTwitter: @aboutIBDPinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposerInstagram: @maccooneycomposerWeb: Cooney StudioYouTube: @MacCooneyComposerTheme music, IBD Dance Party, is from ©Cooney Studio.
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    36 分
  • Insider Secrets to Fearless Travel with IBD

    Insider Secrets to Fearless Travel with IBD
    2026/06/09
    Certified travel advisor, business owner, and ulcerative colitis patient Sarah McGovern joins Amber to give tips and tricks on traveling with IBD. Sarah relates her IBD journey, including a rare medication side effect that landed her in the hospital. Now in remission, Sarah breaks down her blueprint for traveling with an invisible illness. On this episode, you'll learn concrete, practical strategies for traveling with IBD and how a travel advisor can help you relax on your next trip. Transcript and more information at: https://bit.ly/AIBD203 Chapters:
    • 00:04 — Introduction to Sarah McGovern
    • 02:16 — Sarah's Ulcerative Colitis Journey
    • 04:18 — Medication-Induced Pancreatitis
    • 09:03 — Planning Travel with IBD
    • 14:23 — Packing Tips for IBD Travelers
    • 20:39 — Managing Food Restrictions While Traveling
    • 25:38 — The Value of a Travel Advisor
    • 33:00 — Traveling to Disney with IBD
    • 37:03 — Disney's Disability Access Service
    • 43:46 — Travel Hacks
    • 48:16 — Essential Travel Programs
    • 55:07 — Where to Find Sarah Online

    Resources:

    • IBD Specific Travel Information: https://www.ibdpassport.com
    • Delta SkyMiles® Gold American Express Card: https://americanexpress.com/en-us/referral/delta-skymiles-gold-american-express-card?ref=AMBERTxPsU&xl=cp01
    • Foldie Bag: https://amzn.to/4uUkk85
    • Packing Cubes: https://amzn.to/4euki0U

    Find Sarah McGovern at:

    • Instagram: @halcyontravelco
    • Facebook:@halcyontravelco
    • LinkedIn: @halcyontravelco
    • Website: https://halcyontravel.co
    • Sarah's Personal Instagram: @sarahmcgovern99
    Find Amber J Tresca at:
    • AboutIBD.com: About IBD
    • Verywell: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Pinterest: @aboutibd
    • Instagram: @about_IBD
    • YouTube: @AboutIBD
    • Threads: @about_IBD
    Find Mac Cooney (mix, sound design, and theme music) at:
    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • Web: Cooney Studio
    • YouTube: @MacCooneyComposer
    • Theme music, IBD Dance Party, is from ©Cooney Studio.
    These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    58 分
  • The Powerful Impact of the IBD Community Featuring Katie Neu

    The Powerful Impact of the IBD Community Featuring Katie Neu
    2026/05/19

    Episode transcript and more information at: https://bit.ly/AIBD202

    Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel Disease." A survey of more than 500 patients puts a spotlight on the ways IBD affects body image, relationships, intimacy, and mental health. Amber and Katie discuss masking symptoms, the difficulties of working a corporate job, and why having community is critical. Chapters
    • 00:05 — Host Amber Tresca introduces the podcast and her guest, Katie Neu, who lives with Crohn's disease.
    • 01:25 — Amber and Katie discuss the IBD Social Circle, a community for patients, caregivers, and healthcare professionals.
    • 04:25 — The conversation turns to the experience of "faking being well" to manage social and professional expectations with an invisible illness.
    • 10:17 — Katie shares her experiences with the stigma surrounding IBD, from high school and college to the workplace.
    • 13:59 — The discussion focuses on the significant barriers to maintaining a career while living with IBD, including needing accommodations.
    • 23:20 — Amber and Katie discuss the impact of IBD on body image, dating, and intimate relationships.
    • 31:26 — The hosts talk about why people hesitate to join support groups and the mental health benefits of finding community.
    • 37:08 — Katie shares where listeners can find her online, including her Instagram and Substack, to connect and learn more.

    The IBD Social Circle White Paper: The power of community in inflammatory bowel disease

    Find Katie Neu of Badass With a Bad Ass at:

    • Instagram: @badass.w.a.bad.ass
    • LinkedIn: @badasswithabadass

    Find Amber J Tresca at:

    • AboutIBD.com: About IBD
    • Verywell Health: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Pinterest: @aboutibd
    • Instagram: @about_IBD
    • YouTube: @AboutIBD
    • Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • YouTube: @MacCooneyComposer
    • Web: Cooney Studio
    • Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    42 分
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