『About IBD』のカバーアート

About IBD

About IBD

著者： Amber J Tresca
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 Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.©2025 Mal and Tal Enterprises; ©2025 Cooney Studio 衛生・健康的な生活 身体的病い・疾患
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  • How To Build Resilience and Manage Life With IBD Featuring Kinsey Beagley

    How To Build Resilience and Manage Life With IBD Featuring Kinsey Beagley
    2025/12/02

    Episode transcript and more information at: https://bit.ly/AIBD191

    Kinsey Beagley, a pediatric medical assistant diagnosed with ulcerative colitis at 15, shares about her experiences with IBD, including struggling with symptoms, multiple medication failures, and eventually having J-pouch surgery. Kinsey shares how reframing difficult experiences and adopting a positive mindset—her mantra is "I can do hard things"—has helped her cope.

    Chapters

    • 00:04 Introduction and Guest Introduction
    • 02:05 Kinsey's Diagnosis Story
    • 04:42 Initial Treatments and Medication Journey
    • 06:06 Decision for Surgery
    • 07:09 Emotional Impact of Taking a Gap Year
    • 09:05 How and When Surgery Was Discussed
    • 10:12 Life After J-Pouch Surgery
    • 12:30 Reframing Difficult Experiences
    • 14:04 Advice on Positive Mindset
    • 15:35 Inspiration for a Healthcare Career
    • 17:38 Applying Patient Experience to Her Work
    • 18:52 Hiking and Bathroom Anxiety
    • 21:19 Managing Hydration and Pouch Function
    • 22:29 Coping with Bathroom Anxiety in Daily Life
    • 26:24 Practicing Pouch Control and Mental Adjustment
    • 27:26 Where to Find Kinsey Online
    • 28:07 Closing Remarks and Outro

    Some of the topics discussed include:

    • Personal journey of living with ulcerative colitis from diagnosis to treatment.
    • Decision-making process regarding surgical options and the emotional impact of surgery.
    • Experiences and challenges of living with a J-pouch post-surgery.
    • Importance of maintaining a positive mindset and reframing difficult experiences.
    • Strategies for managing anxiety in social situations and daily activities.
    • Tips for outdoor activities and managing bathroom access while hiking.
    • The significance of community support and patient-centered care in chronic illness management.

    Find Kinsey Beagley at:

    • TikTok: @unifyinguc
    • Instagram: @unifyinguc

    Find Amber J Tresca at:

    • AboutIBD.com: About IBD
    • Verywell Health: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Pinterest: @aboutibd
    • Instagram: @about_IBD
    • YouTube: @AboutIBD
    • Threads: @about_IBD

    Find Mac Cooney (mix, sound design, and theme music) at:

    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • YouTube: @MacCooneyComposer
    • Web: Cooney Studio
    • Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    30 分
  • The Truth About Surviving IBD and Incontinence

    The Truth About Surviving IBD and Incontinence
    2025/11/18

    Katryna Loewen, a registered nurse diagnosed with ulcerative colitis in 2020, shares her journey through severe flare-ups, incontinence, and her decision to have a colectomy and ileostomy in 2024. She discusses the emotional and physical challenges of living with IBD, the stigma of ostomies, and how these experiences shaped her life, relationships, and career. Katryna also describes managing her mental health, planning her wedding, and preparing for motherhood, offering hope and practical advice to others with IBD.

    Episode transcript and more information at: https://bit.ly/AIBD190

    Chapters:

    • 00:04 Introduction and Guest Background
    • 02:09 Katrina's Nursing Career
    • 03:08 Ulcerative Colitis Diagnosis
    • 04:48 Remission and Flare-Ups
    • 05:09 Severe Flare in 2023
    • 07:08 Decision for Surgery
    • 10:36 Facing Ostomy Surgery
    • 14:08 Acceptance and Life with an Ostomy
    • 16:08 Impact of IBD on Mental Health
    • 17:18 Incontinence Experiences
    • 23:31 Tracking Symptoms and Advocacy
    • 26:23 Wedding with IBD
    • 28:45 Therapy and Emotional Recovery
    • 32:06 Pregnancy After Ostomy Surgery
    • 37:50 Preparing Pets for Baby
    • 41:54 Support Networks and Advice
    • 43:32 Where to Find Katrina
    • 43:38 Closing Remarks

    Find Katryna Loewen at:

    • Instagram: @goingpains88

    Find Amber J Tresca at:

    • AboutIBD.com: About IBD
    • Verywell Health: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Pinterest: @aboutibd
    • Instagram: @about_IBD
    • YouTube: @AboutIBD
    • https://www.threads.net/@about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • YouTube: @MacCooneyComposer
    • Web: Cooney Studio
    • Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    46 分
  • What You Need to Know About IBD and Gastroparesis Featuring Samantha Sauer, BCPA of G-PACT

    What You Need to Know About IBD and Gastroparesis Featuring Samantha Sauer, BCPA of G-PACT
    2025/11/04
    Samantha Sauer, BCPA, president of Gastroparesis Patient Association for Cures and Treatments (G-PACT), uncovers the challenges of living with gastroparesis and how it can overlap with IBD or other conditions. Sam shares her personal journey with gastroparesis and gives insights on symptoms, diagnosis, misconceptions, and the daily impact on patients' lives. Topics include the difficulties in getting the right diagnosis, the emotional toll of dietary restriction, and the importance of support communities. Sam also highlights resources offered by G-PACT, including support groups and educational outreach, while encouraging self-advocacy and perseverance for those seeking answers or support for their condition. Timestamps on this episode: 0:04 – Introduction and Guest Background1:25 – Samantha's Diagnosis Journey4:17 – What is Gastroparesis? Symptoms and Diagnosis7:19 – Misdiagnosis and Overlapping Conditions10:50 – Inflammation and Gastroparesis12:18 – Impact on Daily and Social Life16:22 – Social Challenges and Stigma18:47 – Common Myths and Misconceptions22:00 – Gastroparesis and IBD Overlap24:57 – Diagnostic and Treatment Challenges27:32 – GPACT Resources and Support31:32 – Advice for Suspected Gastroparesis Patients33:09 – How to Connect with GPACT36:18 – Samantha's Treadmill and Movement Routine38:42 – Closing Remarks and Gratitude More information on the topics discussed: Surviving Out of Spite Podcast via YouTubeEsophagogastroduodenoscopy (EGD) Is a Procedure to Examine Your GI Tract via Verywell Health Metoclopramide: Treatment for Nausea & Vomiting Relationship Between Gastroparesis and Inflammatory Bowel Disease: A United States Nationwide Sized Database Analysis Gastroparesis in patients with inactive Crohn's disease: a case seriesSurviving Out of Spite Podcast Find Samantha Sauer, BCPA and Gastroparesis Patient Association for Cures and Treatments (G-PACT) on: Web: www.g-pact.orgFacebook: @GPACTInstagram: @4gpactYouTube: @GPACT_nonprofitLinkedIn: @gpact Find Amber J Tresca at: AboutIBD.comVerywell: Verywell HealthFacebook: @aboutIBDTwitter: @aboutIBDPinterest: @aboutibdInstagram: @about_IBDYouTube: @AboutIBDThreads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposerInstagram: @maccooneycomposerWeb: Cooney StudioYouTube: @MacCooneyComposerTheme music: IBD Dance Party, © Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    40 分
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