『About IBD』のカバーアート

About IBD

About IBD

著者： Amber J Tresca
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Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease or IBD) are about more than diarrhea because they affect the entire body and every aspect of life. About IBD, hosted by a medical writer and veteran IBD patient, focuses on health and lifestyle issues important to people living with Crohn's or colitis. Patients, doctors, therapists, and care partners give tips and advice on topics including IBD treatment and research, what patients should eat, experiences with anxiety and depression, the effects on family dynamics, and intimacy and sexuality as it relates to living with IBD.©2026 Mal and Tal Enterprises; ©2026 Cooney Studio 衛生・健康的な生活 身体的病い・疾患
エピソード
  • The Hidden Cost of "Faking Being Well" With Allison Fine

    The Hidden Cost of "Faking Being Well" With Allison Fine
    2026/10/20

    Living with a chronic condition places an invisible strain on friendships, marriages, and family dynamics, especially when patients feel the need to mask symptoms. Allison Fine, MSW, LICSW, founder and executive director of the Center for Chronic Illness, discusses breaking the cycle of emotional performance, navigating caregiver burnout, and processing ongoing grief. They explore how support groups are vital in chronic illness and how communication protects long-term relationships.

    Episode transcript and more information at: https://bit.ly/AIBD212

    You'll Learn:
    • Why chronic illness affects friendships, family relationships, and romantic connections
    • Learning to talk about symptoms, limitations, and the need for support
    • How to manage canceled plans, guilt, and social isolation
    • Finding understanding through peer communities and support groups
    • Recognizing caregiver fatigue and supporting the well-being of care partners
    • Creating safe, welcoming, professionally moderated support groups
    • The emotional impact of chronic illness, including grief, acceptance, and adapting to change
    • Providing education and community resources for people with chronic illness and their caregivers
    • Making chronic illness support and education accessible to patients and health care professionals

    Find Allison Fine, MSW, LICSW at:

    • Instagram: @allisonfinemswlicsw
    • LinkedIn: Allison Fine - Seattle

    Find The Center for Chronic Illness at:

    • Web: The Center for Chronic Illness
    • Facebook: @centerforchronicillness
    • Twitter: @cciseattle
    • LinkedIn: Center for Chronic Illness
    • Instagram: @centerforchronicillness
    • Threads: @centerforchronicillness
    • YouTube: @centerforchronicillness5477

    Find Amber J Tresca at:

    • AboutIBD.com: About IBD
    • Verywell Health: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Pinterest: @aboutibd
    • Instagram: @about_IBD
    • YouTube: @AboutIBD
    • https://www.threads.net/@about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • YouTube: @MacCooneyComposer
    • Web: Cooney Studio
    • Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    45 分
  • Why Flare-Ups Aren't Failure: The Truth About Chronic Illness Grief

    Why Flare-Ups Aren't Failure: The Truth About Chronic Illness Grief
    2026/09/22
    Transcript and more information: https://bit.ly/AIBD211 Flare-ups in chronic illness can reopen feelings of grief. Clinical psychologist Dr Antonia Repollet shares her journey with Crohn's disease and how it informs the way she helps patients navigate the emotional challenges of long-term health conditions. Learn ways to maintain your identity despite symptoms, how to come back from comments like "you don't look sick," and how a GI psychologist can be an ally in managing life with a relapsing-remitting condition. Key chapters and timestamps: [00:00] - Introduction: Meet Dr Antonia Repollet, GI psychologist [02:18] - Navigating Crohn's, bullying, and school without accommodations [05:28] - Bridging mind, body, and lived experience to land in GI psychology [07:25] - When and why Dr Repollet discloses her health journey to patients [11:19] - The 7 Stages of Chronic Illness Grief and why the cycles aren't setbacks [14:46] – Coping with invisible illness stigma and responding to "you don't look sick" [19:31] - Reclaiming identity and purpose outside of managing a chronic illness [21:23] - Rejecting the dichotomy of toxic positivity and worst-case scenarios [25:48] – How evidence-based tools such as CBT, gut-directed hypnotherapy, and support groups can help patients cope [29:35] – Closing on how pets, such as cats like Pearl, Bubba Bear, Loki, and Freya, are important allies in managing hard days What you'll learn: Why new anger or sadness during an active flare isn't an emotional setback. How the 7 Stages of Chronic Illness Grief can help process complex issues. Ideas about responding to remarks like "You're too young to be this sick." Steps to reconnect with your values and passions despite managing chronic illness. Why performative wellness sparks burnout and how vulnerability creates true connection. How GI-tailored mental health modalities address the biological gut-brain axis. Resources Steroid Side Effects: https://www.hopkinsvasculitis.org/vasculitis-treatments/prednisone/Psychological Stages of Chronic Illness/Chronic Pain: https://www.jennifermartinpsych.com/yourcolorlooksgoodblog/2015/4/27/psychological-stages-of-chronic-illnesschronic-painGrief and Chronic Illness: Processing the "Old You" — Dr. Antonia Repollet: https://www.gipsychology.com/blog/grief-and-chronic-illness/ Find Antonia Repollet, PsyD at: Instagram: @drantoniarepolletLinkedIn: @antoniarepollet Find GI Psychology at: Website: https://www.gipsychology.com/Instagram: @gipsychusaFacebook: @GIPsychologyYouTube @gipsychologymindyourgutLinkedIn: @gipsychologyTwitter/X: @GIPsychUSA Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    34 分
  • How to Eat Well When Chronic Fatigue Makes Cooking Impossible With Nicholas Kelly MS, RD

    How to Eat Well When Chronic Fatigue Makes Cooking Impossible With Nicholas Kelly MS, RD
    2026/09/15
    Cystic fibrosis (CF) is thought of as a lung disease, but it affects the entire body. Amber Tresca speaks with Nicholas Kelly, MS, RD—a registered dietitian, public speaker, and cystic fibrosis advocate. His diagnosis is a result of his mother's advocacy and research. Nick describes how he balances wanting to fit in with his determination to stand out, how he navigates chronic illness disclosure in the workplace, and his "triple minority" experience within the CF community. Plus, Nick shares practical nutrition tips to help you rethink your relationship with food. Chapters:
    • 00:00 – Amber Tresca introduces Nicholas Kelly, RD
    • 01:29 – What is cystic fibrosis (CF)? The GI, pancreas, and full-body impact
    • 02:43 – Dismantling racial misconceptions and the rise of gene therapies
    • 03:48 – Researching symptoms without Google to beat false negatives
    • 05:28 – Choosing excellence over chronic illness limitations
    • 08:16 – Moving from pushing through to body awareness and acceptance
    • 09:09 – Securing attendance flexibility and extended exam time
    • 10:34 – Maintaining health privacy and avoiding workplace bias
    • 11:44 – Advocating as a "triple minority" and bringing passion to clinician-patient communication
    • 14:01 – Rebuilding a realistic relationship with food
    • 17:04 – Meeting unpredictable illness with empathy
    • 18:28 – 3 Energy-saving nutrition hacks for fatigue
    • 20:31 – The nutritional value of sweet peas and the two-rinse low-sodium trick
    • 22:14 – Connecting with Nick Kelly: Website, social channels, and resources
    • 23:18 – Triple-combo CFTR modulator therapies and finding a cure for CF
    • 24:45 – Outro: Episode wrap-up, show notes, and production credits

    Find Nicholas Kelly, RD at:

    • Web: https://nicholaskellyrd.com/
    • YouTube: https://www.youtube.com/@nicholaskellyrd
    • Instagram: https://instagram.com/nicholaskellyrd
    • Tik Tok: https://tiktok.com/@nicholaskellyrd
    • LinkedIn: https://www.linkedin.com/in/nicholaskellyrd/
    • Facebook: https://www.facebook.com/NicholasKellyRD/
    • Twitter: https://x.com/NicholasKellyRD

    Find Amber J Tresca at:

    • AboutIBD.com: About IBD
    • Verywell: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Instagram: @about_IBD
    • YouTube: @AboutIBD
    • Threads: @about_IBD

    Find Mac Cooney (mix, sound design, and theme music) at:

    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • YouTube: @MacCooneyComposer
    • Web: Cooney Studio
    • Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    26 分
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