What if, for once, a conversation about ALS didn’t begin with despair—but with hope?

This holiday season, host Aaron Lazar invites listeners into a radically different kind of dialogue: one grounded not in fear, but in possibility. The ALS community is too often met with messages of limitation and inevitability. In this special episode, we turn that narrative on its head.

Joining Aaron are three extraordinary individuals— CEO of the ALS network Sheri Strahl, head of the ALS clinic at Duke university Dr. Rick Bedlack, and chief data scientist for PCCI Albert Karam—who each bring a voice of courage, compassion, and conviction. Together, they illuminate what’s possible when advocacy, clinical wisdom, and human connection come together in service of healing.

This conversation lifts up the stories, insights, and lived experiences that inspire strength. Sheri shares how the ALS Network supports families with unwavering dedication. Dr. Bedlack reflects on decades of caring for patients with an open heart and an open mind. Albert speaks to the power of innovation and imagination when seeking answers that bring genuine hope to the community.

This episode is a reminder that while ALS is daunting, the people living with it—and those standing beside them—are even more powerful. Their stories reveal pathways to resilience, connection, and possibility. This is a conversation for anyone who needs to hear that light still breaks through, even in the hardest moments.

This holiday, we offer a gift: a space where hope leads the way.

About the Guests:

Sheri Strahl is President and CEO of the ALS Network, one of the nation's largest ALS advocacy organizations. With a background in public health and business, she leads through three mission pillars: comprehensive care coordination, groundbreaking research partnerships, and tireless policy advocacy. Under her leadership, the ALS Network doesn't just support families—they're actively working to solve ALS.

Dr. Rick Bedlack is a neurologist at Duke University who has dedicated 28 years to transforming ALS care and research. He pioneered a radical approach: partnering with patients as equals in research. Today, he leads ALS Untangled and studies ALS outliers—patients doing extraordinarily well—to identify three key factors that could transform outcomes for everyone.

Albert Karam is Chief Information Officer at the Center for Clinical Innovation, a nonprofit think tank specializing in machine learning and artificial intelligence. As a mathematician and data scientist, Albert develops AI solutions that look beyond medical records to understand the whole person—combining clinical data with social determinants of health to reveal patterns invisible to traditional research.

Connect:

ALS Network Official Website

Become an ALS Advocate

Duke ALS Clinic

ALS Untangled - Alternative Treatment Research

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Presented by The ALS Network

Produced by EVRYBDY Studios

Host: Aaron Lazar

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