In this powerful episode of Desperate for a Diagnosis, Laura sits down with Falguni Desai, a scleroderma warrior, advocate, and survivor who nearly lost her life after a rapid progression of this rare autoimmune disease.

Falguni shares her path from early misdiagnosis to a life-threatening renal crisis, the reality of living with a complex chronic condition, and how she rebuilt her life, voice, and purpose through advocacy.

This conversation explores the importance of early diagnosis, self-advocacy, collaborative care, and the emotional resilience required to navigate rare disease.

If you or someone you love is searching for answers, support, or hope — this episode is for you.

Resources:1. Scleroderma Research Foundationhttps://srfcure.org/

2. Steffens Scleroderma Foundationhttps://www.steffens-scleroderma.org/

3. National Scleroderma Foundationhttps://scleroderma.org/

4. Scleroderma Foundation of Californiahttps://myscleroderma.org/

5. Scleroderma Newshttps://sclerodermanews.com

6. Instagram - Dr Volkmann the_holistic_rheumatologist

7. Checklist created by Dr Volkmann when visiting a doctor.

Contact Falguni: Linkedin https://www.linkedin.com/in/falgunidesai13/

Connect with Laura Nozicka

Email: lauramarie@desperateforadiagnosis.com

Website: www.desperateforadiagnosis.com

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