『A J-Pouch is a Journey... with Pit Stops』のカバーアート

A J-Pouch is a Journey... with Pit Stops

A J-Pouch is a Journey... with Pit Stops

著者: Suzanne Lafleur
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My name is Suzanne Lafleur, and I was diagnosed with Ulcerative Colitis when I was 23 years old. At 33, I went through 4 major surgeries to remove my large intestine, and now I live my life with a J-Pouch. If you don’t know what I am talking about, I invite you to follow me to learn and understand. Living with these autoimmune diseases is not easy. Together, let's change that. Let’s build a community of support instead. To my fellow J-Pouchers, join me in spreading knowledge through open conversation. Please email me at suzannellafleur@gmail.com to share your story.

Suzanne Lafleur 2022
社会科学 衛生・健康的な生活 身体的病い・疾患
エピソード
  • The Infamous Butt Burn
    2024/11/11

    The notorious ‘butt burn’ we face after J-Pouch surgery is no small matter. If you have a J-Pouch, you know exactly what I’m talking about. I never imagined I’d be having open conversation about this with people I’ve never even met, yet here I am! This podcast is here to help you find ways to manage it — until that burn is just a memory. You can do this!

    If there’s a topic you’d like me to cover or if you’re interested in joining me to share your own story, please feel free to reach out at

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    16 分
  • I'm in Pain! Hydration Support for Our Bodies
    2024/11/05

    For years, I couldn’t understand why I was dealing with intense joint, tendon, and tissue pain. I felt like I was managing an arthritic condition, along with Crohn’s and my J-Pouch. I also struggled with brain fog and extreme fatigue. Then, with my new GI specialist’s help, we found that due to my J-Pouch I am not hydrating properly, even with the electrolytes that I take daily. Lo and behold, simple implementation of saline infusions significantly reduced these problems!

    This podcast dives into some of the unexplained issues we face as J-Pouchers. It’s on us to keep advocating for ourselves until we find the answers that allow us to live as healthily as possible.

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    10 分
  • My Last Two J-Pouch Surgeries and So Much More!
    2024/10/23

    I have returned to discuss more about J-Pouch surgery, the recovery after the take down procedure, and the significance of seeking support during our illnesses and surgical experiences. While it can be challenging to persevere at times, we can overcome this together!

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    30 分

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