『032 - “Not Value for Money” Aoife’s Fight for a Future, Living with Friedrich’s Ataxia - Aoife Quinn』のカバーアート

032 - “Not Value for Money” Aoife’s Fight for a Future, Living with Friedrich’s Ataxia - Aoife Quinn

032 - “Not Value for Money” Aoife’s Fight for a Future, Living with Friedrich’s Ataxia - Aoife Quinn

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Aoife Quinn is 23, from Galway, and living with a rare condition called Friedreich’s Ataxia.

Right now, her symptoms are manageable.
But she knows what’s coming.

She knows there’s a drug that could slow the progression of her condition and protect her future.

The problem?

It has been deemed “not value for money.”

In this episode, we talk about:

  • Being diagnosed at 18
  • Living with uncertainty and fear
  • The impact on family and identity
  • Fighting for access to life-changing treatment

This isn’t just about chronic illness.

It’s about what happens when the treatment exists… but you can’t access it.

Aoife isn’t asking for a miracle.
She’s asking for a chance.

🔗 Support Aoife - https://www.change.org/p/make-skyclarys-available-in-ireland

IG - @aoifequinn31

Massive thank you to todays sponsor Western Auto Parts Oranmore.

For all you motoring needs contact: 091-79014


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