In this episode of Holyoaks Rise: Stories of Rising Through the Unexpected, Amanda sits down with Jasmine, a homeschooling mom and medical mother whose oldest daughter lives with Smith-Kingsmore syndrome, a rare genetic disorder that has brought significant medical challenges, developmental delays, feeding difficulties, and a severe seizure disorder.

Jasmine shares the story of her family, the journey toward receiving a diagnosis, and what life really looks like raising a child with complex medical needs. She opens up about the uncertainty, heartbreak, advocacy, and resilience that have shaped her family’s path.

In Part 1, we discuss:

• The dreams and expectations Jasmine had before motherhood
• The first signs that something might be different with her daughter
• The long road to receiving answers and a diagnosis
• What Smith-Kingsmore syndrome looks like in everyday life
• Navigating medical emergencies and ongoing care needs
• The realities of medical motherhood that many people never see
• Advocacy, resilience, and learning to adapt to the unexpected
• What she wishes doctors, therapists, educators, and others understood about families like hers

This conversation offers an honest look at life behind the appointments, therapies, hospital visits, and daily caregiving responsibilities that come with raising a medically complex child.

Join us next week for Part 2 as Jasmine shares more about her daughter beyond the diagnosis, sibling relationships, a second diagnosis in the family, and the hope that has carried them through some of their hardest seasons.

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