Realities of the Nano-rare: Episode 2 Oliver Glass
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Realities of the Nano-rare: Episode 2 Oliver Glass
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概要
A nano-rare diagnosis changes more than one life—it transforms an entire family.
In this episode of Realities of the Nano-rare, n-Lorem CEO Stan Crooke sits down with Oliver Glass, Ph.D., MHSc, for an honest and heartfelt conversation about raising a child with DYRK1A syndrome. Together, they discuss the early signs something was wrong, the long search for answers, the realities of daily life, and how their family has adapted to build a new normal.
From daily challenges to unexpected lessons in resilience, love, and perspective, this episode offers a powerful look inside one family’s journey with rare disease.
🎧 Listen now and subscribe for more conversations from the nano-rare community.
Learn more about n-Lorem: https://www.nlorem.org
Episode Chapters
0:00 Intro
1:30 Stan introduces Oliver Glass and his family’s story
7:30 Early signs and symptoms
14:20 Running tests and searching for answers
16:25 The diagnosis journey
23:00 What is DYRK1A?
27:45 Life with Ethan today
32:40 How life looks different as a family
34:00 When the Glass family first heard about n-Lorem
36:20 Biggest worries for the future
38:45 Supporting siblings and balancing attention
43:00 Advice, reflection, and hindsight
#RareDisease #DYRK1A #GeneticDisorders #PatientStory #Podcast #nLorem #CaregiverJourney #FamilyStory