In this episode of ALS to the Moon and Back, Portia and I finally get to the thing we were always going to get to… timelines.

You know the ones.
The point scores.
The predictions.
The question people ask — sometimes quietly, sometimes not — “How long have you got?”

I talk about the timelines I’ve been given since being diagnosed with ALS, why I don’t see them as a fixed truth, and how I actually live alongside that information without letting it run the show. We talk about what those numbers don’t capture — individuality, access to care, emerging treatments, mindset, hope, stubbornness… all the human stuff.

We also wander (as we do) into voice banking, legacy, leaving an audio record for the people you love, finding your voice, speaking up, even if it makes you shakey.

This episode is for anyone living with ALS or MND, anyone walking alongside someone they love, and anyone who’s ever been handed a story about their future that didn’t quite sit right.

The timeline is information.
It’s not the whole story.

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