Louise is the mother of Isabelle, a 3-year old who lives with a rare condition called Severe Combined Immune Deficiency ("SCID" or the "Bubble Baby condition"). SCID babies are born without a functioning immune system and cannot fight off even the simplest viruses or infections. After Isabelle survived her life-saving Stem Cell Transplant at 7 months old, Louise went on to join the campaign to successfully advocate for SCID to be added to Australia’s Newborn Bloodspot Screening Panel. SCID is now detected, diagnosed and treated soon after birth in Australia - before a baby becomes critically ill or passes away. Louise also sits on the Board of the Immune Deficiencies Foundation of Australia (IDFA), supports other families who have a child born with SCID and is an advocate and peer mentor to families living with any Immune Deficiencies.

Immune Deficiencies Foundation of Australia (IDFA) Website https://www.idfa.org.au/
IDFA Facebook https://www.facebook.com/ImmuneDeficiencyFoundationAustralia/
IDFA Instagram https://www.instagram.com/theidfa/

IDFA LinkedIn https://www.linkedin.com/company/the-immune-deficiencies-foundation-of-australia/

Our work at Patient Voice Initiative is only possible thanks to the generous support of our Sponsors; for a full list of both our Gold and Silver contributors, please visit our Website.

Find out more about PVI by visiting our website https://www.patientvoiceinitiative.org/

Produced by The Podcast Boss

Claire Devine is a best selling artist and emerging ecommerce/personal branding authority. Her works are collected worldwide and she imbues business and art with heartfelt candour, compassion and kindness.
The Granddaughter of celebrated French artists and potters, Claire was born in Toulouse, France and grew up in an art gallery space in Brisbane, Australia. A classical musician and high school teacher, she started painting as a way to pass the evening hours while her handsome Irish husband, Seamus, was away for work.

Claire took a break from her regular work when Seamus became ill and their infant son was diagnosed with partial blindness. This break allowed the family to reprioritise, focus on each other and give energy to Claire’s painting. As popularity for Claire’s work grew, The New Devine quickly evolved from a painting pass time into a serious, full-time business.

Claire’s art comes from a place of deep love for her family because of their circumstances with Seamus’s poor health and sons’ disability - the journey they went through (and continue to travel) to create contentment, joy and focus on family, love and togetherness all feeds and informs her artistic practice. Claire and Seamus have 3 (ex-premature baby) boys, two with albinism and legal blindness and one with Epilepsy like his father.

Claire lives in a little seaside suburb of North Brisbane and loves coffee, vintage champagne, Dad jokes, yoga and long walks with her 'tame wolf.’

Claire’s Website https://thenewdevine.com/
Claire’s Instagram https://www.instagram.com/thenewdevine/
Claire’s LinkedIn https://www.linkedin.com/in/claire-devine-aa6a761a4/
Our work at Patient Voice Initiative is only possible thanks to the generous support of our Sponsors; for a full list of both our Gold and Silver contributors, please visit our Website. Find out more about PVI by visiting our website https://www.patientvoiceinitiative.org/

Produced by The Podcast Boss

Geoff is a dad, husband, blogger, public speaker and an active patient advocate. Since being diagnosed in 2014 with the terminal blood cancer multiple myeloma, Geoff uses this adversity as a means to lead by example in helping others to become empowered with the challenges that they may face. His advocacy includes working as a volunteer for Peter MacCallum Cancer Centre, Snowdome Foundation, the Walter and Eliza Hall Institute of Medical Research and Myeloma Australia. In addition, he provides ‘blood buddy’ support to many diagnosed patients, he is a research ‘consumer’ where he supports many research projects, and he is an active presenter where he provides inspiration to others as they navigate their own adversity. Geoff is also founder/director of MY Mount Eliza Run & Fun Festival, and has raised nearly $400k for research and patient support since 2017. Geoff believes that his diagnosis does not define him, nor limit him, and in fact, powers him towards supporting others, raising awareness and funds for myeloma research.

Geoff’s Website https://geoffnyssen.com/
Geoff’s LinkedIn https://www.linkedin.com/in/geoff-nyssen-5457a31/

Geoff’s Facebook https://www.facebook.com/geoffnyssenspage/
Our work at Patient Voice Initiative is only possible thanks to the generous support of our Sponsors; for a full list of both our Gold and Silver contributors, please visit our Website.

Find out more about PVI by visiting our website https://www.patientvoiceinitiative.org/

Produced by The Podcast Boss